so I've had chronic pain for several years (like I was in elementary school when it started) and I can't count on both hands how many doctors I've seen, but today I finally got a diagnosis of hEDS!! I know there isn't much I can do for it but having a name to put to my symptoms is really relieving <3
Congratulations! I can so relate. Took me long to get a name too. It's Soo freeing. You can now see what helps others and start your journey. Know it's overwhelming too so no shame I needing time to process
I know this was from a few weeks ago but still, congratulations!! I started dealing with joint pain and instability back in middle school and only just got a diagnosis of heds in February of this year. I was so relieved and overjoyed to finally have answers that I screamed when I got in the car
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.
Share
Copy Link
Copied
Join the Alike community
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
.svg)
.svg)
queerly_beloved
304d
so I've had chronic pain for several years (like I was in elementary school when it started) and I can't count on both hands how many doctors I've seen, but today I finally got a diagnosis of hEDS!! I know there isn't much I can do for it but having a name to put to my symptoms is really relieving <3
5
2
Share
Hypermobility Syndromes
Ehlers-Danlos Syndrome (EDS)
Chronic Pain
LeeannD
304d
1
L1teralsatan
285d
0
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision