so I've had chronic pain for several years (like I was in elementary school when it started) and I can't count on both hands how many doctors I've seen, but today I finally got a diagnosis of hEDS!! I know there isn't much I can do for it but having a name to put to my symptoms is really relieving <3

Hypermobility Syndromes

Ehlers-Danlos Syndrome (EDS)

Chronic Pain

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  • LeeannD


    Congratulations! I can so relate. Took me long to get a name too. It's Soo freeing. You can now see what helps others and start your journey. Know it's overwhelming too so no shame I needing time to process

  • L1teralsatan


    I know this was from a few weeks ago but still, congratulations!! I started dealing with joint pain and instability back in middle school and only just got a diagnosis of heds in February of this year. I was so relieved and overjoyed to finally have answers that I screamed when I got in the car

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