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Recurring Endometriosis After Hysterectomy and Frustration with Autism Diagnosis

tomorrowsara

566d

Anyone have recurring endometriosis after hysterectomy? Also, no one believes I’m autistic and it’s frustrating AF.

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6

6

Endometriosis

Autism Spectrum Disorder (ASD)

Hysterectomy

Generalized pain

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    • tomorrowsara

      564d

      @100Percent_K ooh that’s good to know, thank you!

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    • 100Percent_K

      565d

      See an excision surgeon. They operate on post hysterectomy patients all the time.

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      • tomorrowsara

        564d

        @100Percent_K ooh that’s good to know, thank you!

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        Reply
    • Foof

      565d

      No. I get the same old go on birth control pill to manage it but I refuse that because I feel worse on it. I have found some relief with working with a pelvic floor physical therapist but with POTS is have so many set backs that its a bit disheartening. But I would definitely recommend seeing a pelvic floor pt!

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      • tomorrowsara

        564d

        @Foof yes! I hate the “just take birth control” sentiment. It is always a terrible experience. And I actually did see a PT earlier this year which helped with cramping. I didn’t keep up with it on my own. I should do that. Good suggestion!

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    • Foof

      565d

      Yes and no one believes how painful it still is and all the scar tissue issues they say I should be grateful I don't have adenomyosis anymore 🤦🏼‍♀️

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      • tomorrowsara

        565d

        @Foof ugh that sucks so much when people are dismissive. I was great for like two years after my surgery, but my pms symptoms keep coming back and increasing but I feel like no one can/will help. Have you had any success with an endo doctor?

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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