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Squishy97

Updated 2mo ago

Struggling with Medical Misdiagnosis and Feeling Alone

Feeling pretty alone right now.. I've been having nausea, vomiting, and stomach pain for as long as I can remember. Had an endoscopy where they found a neuroendocrine tumor that was cancerous in the curvature of my stomach. However since then getting help from doctors is non existent.. I had another endoscopy where they had an ultrasound thing attached to the end and they found all sorts of little nodules that prove I have Zollinger Ellison Syndrome however I had food left over in my stomach due to slow digestion and so they were unable to see the tumor that was in the curvature of my stomach. After that procedure I was told by the doctor that in all his years of being a GI doctor he didn't believe I had a tumor he doesn't know where my GI doctor even got that idea (even though there was a biopsy to prove it) and I was to young to have Zolling Ellison Syndrome. Just to be called after my biopsies from that procedure showing I had Zollinger Ellison and to be told I lied about him saying that (my fiance was a witness to the conversation at the procedure). I than see my cancer doctor who told me that this tumor was somehow removed and they didn't see any tumor the last endoscopy (which duh even in the notes of the procedure says that there was food leftover and they were unable to see the curvature of my stomach where the tumor was) plus its tiny from what I've found. However this oncologist is also my hematologist now and instead of telling me to my face he diagnosed me with iron deficiency due to chronic blood loss ( I've been anemic all my life and doctors never could tell me why) Anyways he put that in my chart I send a message because I was shocked and was told it is due to the Zollinger Ellison Syndrome causing a slow bleed however if I'm experiencing an active internal bleeding to go get seen. Than looking back at my medical records I than find that I've had a diagnosis for Zollinger Ellison Syndrome since 2022 or 2023 but was never told! I'm just at a loss with everything and all my medical problems being so rough on me. I'm just feeling alone..

Can you help? connect today

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Melissa326

2mo

❤️ 🙏

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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