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825d
I'm so frustrated, and feel so helpless at this point when I comes to adequate care. I genuinely feel like doctors HATE when you know more about yourself than they do. The genetics doctor I saw was the only out of 10s who have ever affirmed and believed me. I told my PCP that I was diagnosed with EDS and she seemed so cold about it. A neuropsychologist dxd me with ADHD and Autism and my psychiatrist had a similar reaction. Why won't they believe me? I have lost my trust and now don't ever feel like seeing them other than base line things if I can help it. I have been thinking that I might have POTS/ problems with my heart, but I genuinely do NOT want to put my energy to talking with my doctor. I will go, get a condescending talking to, receive no care, and waste money. I have changed my PCP over 6 times and I can't go out of network. I am stuck with this doctor. I am so frustrated. I feel so weak and awful, but would rather figure it out myself than talk to a "professional"
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122d
š maybe confront/ ask them about the attitude you perceive from them?
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824d
My therapist the first time I talked to her said āI donāt think you have PTSDā. Like uhm sorry I didnāt wanna spill every single bit of my trauma on my first visit
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Unfortunately, I know how you feel. I was diagnosed with CRPS by 3 different doctors & then I moved and had to find a new Dr. The new Dr doubted the diagnosis & made me do a bunch of testing to confirm it before she did anything to help me. I'm not sure why the painful nerve testing was necessary š¤·āāļø
I am in the same boat you are not alone! My doctors that I see want to blame me being a mom as a reason for all my health problems! Or they say Iām depressed! Itās crazy.
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i relate to this so hard. itās like if you think you could have something, you have to be so gentle about bringing it up or you have to describe the symptoms like you actually have no clue what you may have. itās like doctors are always doubting and looking down on you. doing your own research and coming to general conclusions about your own health is looked down upon :(
Yeah I always go into my doctors office with notes and they look at me like I am crazy except for my regular doctor, he did say that if all his patients came in like me his job would be so much easier. I write down my symptoms, things I have done to help, and things I have read online . I recently went to a dermatologist and I had a bunch of notes and she acted like I was crazy and didnāt want to listen to me at all. She even misdiagnosed me saying that my red rash was from the sun and I the area where it was doesnāt even get sun!!! She is the one that is crazy!!!!
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I'm currently fighting a doctor who strung me along for a year changing my meds, avoiding appt requests and now he's trying to deny my diagnosis and get rid of me to a regular gasterenterologist. And my Dr is the head of the gasteroparesis clinic at Cleveland clinic and it just feel like we'll if he can't help me, wtf am I suppose to do
I understand this so much more than I wish I did. I'm sorry that so many doctos have know it all complexes. Keep advocating for yourself to the best of your ability. Many hugs and much love.
I feel you 1000%. The way doctors can get when you are just *aware* of what you are going through and at all name certain disorders they suddenly turn into an expert about you without any of the context. I had a lot of similar issues with psychiatrists and at this point Im not planning on seeing another one as Ive run out of options. I am still willing to give it more tries for my chronic illness doctors but thats because I dont have another choice with one of my illnesses. I am so sorry you are dealing with such shitty doctors, you deserve so much better. Its a good thing you are here because you can learn through others. And reporting a doctor for improper care is an option in most cases. Sometimes someone bigger than a patient needs to scold them. Your frustration is valid.
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ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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