JustRachelle

220d

I’m sure we all have heard that Fibromyalgia doesn’t get worse overtime or that it’s not “progressive”. But does anybody feel like that’s exactly what’s happening. Everything is getting worse! Each year is worse than the last. The symptoms keep changing and new ones happening.

Generalized pain

Tramadol

Meloxicam

Fibromyalgia (FM)

Migraine

Feeling of choking

acute lethargy

Chronic Generalized pain

View all
  • PineappleSunshine

    220d

    I feel the exact same way and I would venture to guess those who say it's not progressive (or even autoimmune related, for that matter) have never experienced it. I will be praying you are able to find some relief. Hang in there!

    • JustRachelle

      220d

      same here. 💕

  • 1lovemyheatingp8d

    220d

    Same thing is happening to me! Sending love your way ❤️

    • JustRachelle

      220d

      ❤️ ❤️

  • blue89

    220d

    In my experience, I agree. I think it would be better for people to frame it as not visibly degenerating (i.e. how arthritis can cause visble change to bone structure) rather than not degenerating period. I definitely think and have found that fibromyalgia can get worse over time in terms of pain, fatigue, mobility, etc. I used to mostly only deal with pain and intense pain in certain areas, but overtime that has expanded to other symptoms beyond pain people don't talk about enough and caused intense pain everywhere. I've always (and still hold) that my wrists/hands and neck/back are the worst, but on bad days I'm considering a cane, something inconceivable to me 2 years ago

    • blue89

      220d

      Very long, apologies Tl;DR- agree it can be progressive

    • JustRachelle

      220d

      no apologies needed lol thanks for responding! It seems like things are getting more intense than before.

      • blue89

        220d

        more intense is a good way to describe it, as well as more present, seeing it more in day-to-day life

  • Teardrops

    220d

    Who says that??? Not people who deal with it I am sure. It’s has gotten worse and worse over time. All I hear from doctors and medical people is to exercise more and stretch and eat healthy. Narcotics are not the answer, or so I am told too! I am trying on to move more but I end up over doing when I do it. Wish doctors understood people with fibromyalgia more

    • Fibrofoggirl

      220d

      do you have a pain dr.?

      • Teardrops

        220d

        yea. She is doing injections in my neck right now. Not doing anything exactly for fibromyalgia okay she isn’t doing anything for fibromyalgia I don’t have any medications for fibromyalgia. I added back my Meloxicam for my lower back spasms which is next in the list of things to try and treat after the neck pain is under control. I also have a orthopedic who is looking at my wrists/thumbs and is sending me to see a neurologist to do a nerve conduction study. I saw a neurologist to treat the migraines but it might be a hopeless situation with those. And she doesn’t do the nerve study so that’s someone else in that office. Which I can’t get the study done until January 2023, because they are that booked up.

    • JustRachelle

      220d

      doctors say it.. google says it 🤣 but of course those of us who actually deal with it understands how it gets worse every year or at some point it’s worse than it was. Exercise doesn’t help me at all. I refuse to take narcotics.

  • Nekoshi

    220d

    Disease is progressive not fibro, fibro can be given as a false diagnosis in many ankylosing spondylitis cases and arthritis

    • JustRachelle

      220d

      based off of research I’ve been worried about AS … especially since I have DDD and DD ..

  • Fibrofoggirl

    220d

    I’m so sorry, it’s so misunderstood, I tell me pain dr. To give me tramadol. It helps a little if you want I can send you some

    • Teardrops

      220d

      I have been on that before. Doesn’t help me. Sorry.

    • JustRachelle

      220d

      it just made me feel high really but it didn’t help me at all.

  • Sn

    220d

    Oh believe me Fibromyalgia dies get worse as we get more symptoms. It started with me 50 years ago & I wonder how much worse it can get.

    • Teardrops

      220d

      I hear you. But I think I am only like 25 years dealing with this unless I had it as a teenager or something then it’s been longer. I am at the point where I hardly move and I hurt too much. Migraines daily and body aches that are more than an ache. No OTC touches the pain and I have tried a several other prescriptions which don’t work well

  • Pattie96

    218d

    That’s exactly what’s happening to me… it’s happening faster to me now… I’m so tired of my pain management and doctors 😭

  • Kion

    215d

    I definitely feel like mine has gotten worse over the years. I used to be able to deal with the pain and go about my day, but my bad days seem to have not only gotten worse with pain, but also come about more frequently. Some days all I want to do is lay in bed and cry. It's so draining physically and emotionally. I am a teacher and the past few years I have seriously considered looking for a new job because I don't feel like my body can handle teaching anyone. It breaks my heart to think about it. I love being in the classroom with my little learners but it is such a challenge on my body anymore.

  • qveenofthecastles

    213d

    I've never heard this. The opposite actually.

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