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JustRachelle

541d

I’m sure we all have heard that Fibromyalgia doesn’t get worse overtime or that it’s not “progressive”. But does anybody feel like that’s exactly what’s happening. Everything is getting worse! Each year is worse than the last. The symptoms keep changing and new ones happening.

Top reply
    • qveenofthecastles

      535d

      I've never heard this. The opposite actually.

    • qveenofthecastles

      535d

      I've never heard this. The opposite actually.

    • Kion

      537d

      I definitely feel like mine has gotten worse over the years. I used to be able to deal with the pain and go about my day, but my bad days seem to have not only gotten worse with pain, but also come about more frequently. Some days all I want to do is lay in bed and cry. It's so draining physically and emotionally. I am a teacher and the past few years I have seriously considered looking for a new job because I don't feel like my body can handle teaching anyone. It breaks my heart to think about it. I love being in the classroom with my little learners but it is such a challenge on my body anymore.

    • Pattie96

      539d

      That’s exactly what’s happening to me… it’s happening faster to me now… I’m so tired of my pain management and doctors 😭

    • Sn

      541d

      Oh believe me Fibromyalgia dies get worse as we get more symptoms. It started with me 50 years ago & I wonder how much worse it can get.

    • Fibrofoggirl

      541d

      I’m so sorry, it’s so misunderstood, I tell me pain dr. To give me tramadol. It helps a little if you want I can send you some

      • JustRachelle

        541d

        @Fibrofoggirl it just made me feel high really but it didn’t help me at all.

    • Nekoshi

      541d

      Disease is progressive not fibro, fibro can be given as a false diagnosis in many ankylosing spondylitis cases and arthritis

      • JustRachelle

        541d

        @Nekoshi based off of research I’ve been worried about AS … especially since I have DDD and DD ..

    • blue89

      541d

      In my experience, I agree. I think it would be better for people to frame it as not visibly degenerating (i.e. how arthritis can cause visble change to bone structure) rather than not degenerating period. I definitely think and have found that fibromyalgia can get worse over time in terms of pain, fatigue, mobility, etc. I used to mostly only deal with pain and intense pain in certain areas, but overtime that has expanded to other symptoms beyond pain people don't talk about enough and caused intense pain everywhere. I've always (and still hold) that my wrists/hands and neck/back are the worst, but on bad days I'm considering a cane, something inconceivable to me 2 years ago

      • JustRachelle

        541d

        @blue89 no apologies needed lol thanks for responding! It seems like things are getting more intense than before.

        • blue89

          541d

          @JustRachelle more intense is a good way to describe it, as well as more present, seeing it more in day-to-day life

      • blue89

        541d

        @blue89 Very long, apologies Tl;DR- agree it can be progressive

    • 1lovemyheatingp8d

      541d

      Same thing is happening to me! Sending love your way ❤️

      • JustRachelle

        541d

        @1lovemyheatingp8d ❤️ ❤️

    • PineappleSunshine

      541d

      I feel the exact same way and I would venture to guess those who say it's not progressive (or even autoimmune related, for that matter) have never experienced it. I will be praying you are able to find some relief. Hang in there!

      • JustRachelle

        541d

        @PineappleSunshine same here. 💕

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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