See Alike in...

Alike App

Browser

Mickey_Buff

655d

Hi I'm Mickey. I was wondering if anyone else who has Ehlers-danlos when did you start becoming more dependent on having to use a mobility aid like a wheelchair, crutches, cane, or walker.

Top reply
    • mobilityaidbabe

      295d

      I have POTS because of my hEDS so I started using a wheelchair when I couldn't walk/stand for very long without passing out. I'm working in physical therapy on my orthostatic tolerance and have started using a walker as an instant chair for going out. When I have hip and knee injuries I use mobility aids as needed.

    • mobilityaidbabe

      295d

      I have POTS because of my hEDS so I started using a wheelchair when I couldn't walk/stand for very long without passing out. I'm working in physical therapy on my orthostatic tolerance and have started using a walker as an instant chair for going out. When I have hip and knee injuries I use mobility aids as needed.

    • Loki.a.mess

      296d

      I alternate between forearm crutches, a wheelchair, and heavy duty knee braces. The knee braces were my first aid about 6 years ago, the forearm crutches came about 2 years ago, and I recently started accepting that sometimes I'll be in a wheelchair.

    • Mickey1210

      312d

      I am also Mickey I have vascular ehlers danlos syndrome I use AFO braces which help a lot and I also have forearm crutches that I take with me when I know I’m going to be walking a lot

    • ChronicallyKitteh

      314d

      I used a walking stick from about my mid 20s, then ventured to getting a rollator with a seat I use most of the time, and I got my wheelchair earlier this year and I'm 31 now, although to be honest it's the POTS that mostly has be using my wheelchair

    • Student_girl

      314d

      I use crutches and AFO braces for short distances (in my house mostly), and a chair for anything longer. My chair is a custom one I got a prescription for and went through the rehab hospital to get.

    • chronicallyillchef

      315d

      I started using a body braces about six years ago, crutches for a while and then I got my first walking stick about 2 years ago (I am 23). It gives me a lot more freedom but sometimes a stick doesn't feel like enough, but I've not ventured into anything else yet.

    • Hope22424

      654d

      I have AFO braces, a cane, walker, and wheelchair but I mostly use the chair and braces. Honestly part of it is because I feel like "its more accepted to see a young person in a chair than any other mobility aid" wich I think is bs 😒 but I also use it more because I can't walk for long periods of time regardless.

      • Hope22424

        654d

        @Hope22424 Also just realized I didn't answer the question lol. I started using my braces about 2 years ago, cane one, and I got a chair off Amazon in February and it's been a life saver. How many times I've had to lay down in walmart lol 😆

    • AudaCity

      654d

      I am on and off my mobility aids but I ended up getting a walker when I had hip surgery and had also sprained my ankle on the other leg. It was SO helpful. Recently I had sprained both ankles and was in a wheelchair for a bit and that was also really helpful. I find that I just keep my medical assistance devices in my basement for when I need them because sometimes they're super needed and sometimes I'm fine.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion