Mickey_Buff

148d

Hi I'm Mickey. I was wondering if anyone else who has Ehlers-danlos when did you start becoming more dependent on having to use a mobility aid like a wheelchair, crutches, cane, or walker.

Ehlers-Danlos Syndrome (EDS)

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  • AudaCity

    148d

    I am on and off my mobility aids but I ended up getting a walker when I had hip surgery and had also sprained my ankle on the other leg. It was SO helpful. Recently I had sprained both ankles and was in a wheelchair for a bit and that was also really helpful. I find that I just keep my medical assistance devices in my basement for when I need them because sometimes they're super needed and sometimes I'm fine.

  • Hope22424

    148d

    I have AFO braces, a cane, walker, and wheelchair but I mostly use the chair and braces. Honestly part of it is because I feel like "its more accepted to see a young person in a chair than any other mobility aid" wich I think is bs 😒 but I also use it more because I can't walk for long periods of time regardless.

    • Hope22424

      148d

      Also just realized I didn't answer the question lol. I started using my braces about 2 years ago, cane one, and I got a chair off Amazon in February and it's been a life saver. How many times I've had to lay down in walmart lol 😆

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