See Alike in...

Alike App

Browser

Amiela

705d

how do y'all cope with epilepsy

Top reply
    • Sheeba

      703d

      @Columbia you have to laugh at it. I mean what else can you do to stay sane. I have some funny stories involving my epilepsy. I cope with it by saying it is what it is. I can't do anything about it. I do take three meds and have a VNS. The VNS has been replaced three times and the one I have now is at 35%. I do things to take my mind off of it. I have coloring apps on my phone and use them to de-stress myself, I play games and listen to music on my phone, etc. I really don't think about it all that much. I have had it for almost 21 years now. My seizures were so bad in the beginning that I had no quality of life and I was actually dying from the epilepsy seizures. That's what got me the VNS and it completely turned my life around. I will have had the VNS for 16 years this September. Okay a funny story. Along time ago I was having a seizure, I was my myself and somehow unlocked both dead bolts on the inside house door, unlocked the screen door and walked down the street where I sat down and then it ended. My neighbor was in the yard and was watching me. She sat with me until I was feeling better and not so clouded over. To this day I will never understand how I did all that stuff.

    • Columbia

      705d

      I dont get too many panics as much as I used to and I know it's concerning to most people but I laugh at some dumb situations that's my seizures have came into play. One time I fell down the stairs having a seizure in kindergarten on the last day. I was walking down the stairs stupidly. I just look back and laugh.

      • Sheeba

        703d

        @Columbia you have to laugh at it. I mean what else can you do to stay sane. I have some funny stories involving my epilepsy. I cope with it by saying it is what it is. I can't do anything about it. I do take three meds and have a VNS. The VNS has been replaced three times and the one I have now is at 35%. I do things to take my mind off of it. I have coloring apps on my phone and use them to de-stress myself, I play games and listen to music on my phone, etc. I really don't think about it all that much. I have had it for almost 21 years now. My seizures were so bad in the beginning that I had no quality of life and I was actually dying from the epilepsy seizures. That's what got me the VNS and it completely turned my life around. I will have had the VNS for 16 years this September. Okay a funny story. Along time ago I was having a seizure, I was my myself and somehow unlocked both dead bolts on the inside house door, unlocked the screen door and walked down the street where I sat down and then it ended. My neighbor was in the yard and was watching me. She sat with me until I was feeling better and not so clouded over. To this day I will never understand how I did all that stuff.

    • Lethean

      705d

      I try to laugh. Yes, it has turned my life upside down, but I have to laugh to stay out of the valleys. It also helps most to have those laughs with someone that understands what life like this is like.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion