SAMHAIN

288d

Does heart pain have anything to do with EDS?

Chest pain

Ehlers-Danlos Syndrome (EDS)

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  • Messymexi

    288d

    It all has to do with the system in your body that is all messed up. It also controls dilation and constriction of blood vessels. The dysautonomia system includes the heart 🫀

  • SAMHAIN

    288d

    I apologise, I'm also autistic and struggling to follow this message. Could you maybe re-word it a different way?

  • Sigil

    288d

    It's possible. Our whole body is made of cartilage and that's what eds messes with the production of. I would make sure you rule our vascular eds as your version of the illness, because vascular does have a lot of added considerations

  • SAMHAIN

    287d

    Most of my symptoms seem to be issues with producing wayyyyy too much keratin in my paper skin wounds, and hair follicles not breaking the skin so I have constant infectious, cystic abcesses. But, Ive noted recently in convo with an hEDS friend that ive had some heart pain that apparently isnt "normal" since adolescence 😳 I'm new to this disease community and i dont know a whole lot about EDS because it seems most of the information resources are behind a paywall or social-wall (the EDS discord banned me the literal first time I posted after someone assaulted me for posting a message like an autist? And I dont have Facebook so that community is worth-less to me dont mention it).

  • SAMHAIN

    287d

    How do i "rule out" vascular subtype without a Dr in the state who understands this condition?

  • SAMHAIN

    287d

    PPS: you mean"collagen," not "cartilage," right? Because that isn't consistent with what I've read as written?

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