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Looking for others with pseudotumor cerebri/IIH

Gaz

548d

okay hello is there anyone with pseudotumor cerebri/iih alive on this apppppppppp

1

6

6

Pseudotumor Cerebri

Migraine

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Top reply
    • RescueMom

      503d

      @Gaz vision came back much better, I only need glasses for reading. My headaches and migraines down to maybe twice a month. I had none the first year after surgery. However was warned they will come back some. I however have other health issues, mostly my heart so I deal with a lot. My IIH is the least of my worries now.

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    • NannaL

      506d

      Hey! Another IHer here šŸ¤—

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    • RescueMom

      507d

      Me šŸ¤— I had brain surgery two years ago to get my VP shunt, due to rapid lost of vision from my IIH.

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      Reply
      • Gaz

        507d

        @RescueMom oh!! if you don't mind sharing, what is your situation like now? With your vision, with your shunt, with your health in general

        1

        Reply
        • RescueMom

          503d

          @Gaz vision came back much better, I only need glasses for reading. My headaches and migraines down to maybe twice a month. I had none the first year after surgery. However was warned they will come back some. I however have other health issues, mostly my heart so I deal with a lot. My IIH is the least of my worries now.

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          Reply
    • Acz

      507d

      Hi! I was actually diagnosed with it two weeks ago and am in the process of treating it. Iā€™d love to discuss with you!

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      Reply
      • Gaz

        507d

        @Acz yoooo that would be cool! I'll dm you

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        Reply

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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