Gaz

99d

okay hello is there anyone with pseudotumor cerebri/iih alive on this apppppppppp

Pseudotumor Cerebri

Migraine

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  • Acz

    58d

    Hi! I was actually diagnosed with it two weeks ago and am in the process of treating it. I’d love to discuss with you!

    • Gaz

      58d

      yoooo that would be cool! I'll dm you

  • RescueMom

    58d

    Me 🤗 I had brain surgery two years ago to get my VP shunt, due to rapid lost of vision from my IIH.

    • Gaz

      58d

      oh!! if you don't mind sharing, what is your situation like now? With your vision, with your shunt, with your health in general

      • RescueMom

        54d

        vision came back much better, I only need glasses for reading. My headaches and migraines down to maybe twice a month. I had none the first year after surgery. However was warned they will come back some. I however have other health issues, mostly my heart so I deal with a lot. My IIH is the least of my worries now.

  • NannaL

    57d

    Hey! Another IHer here 🤗

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