Yes I was diagnosed via skin biopsy, I'm not happy with my current rheumatologist either, keeps telling me I shouldn't be in pain, there are 2 types, one that just affects the skin, then the which is what I have affects all of your organs, I've lost the sight in my right eye. And I'm slowly losing my left, it's also affecting my lungs and kidneys, I've also had a stroke, courtesy of the awful disease