Stories
Privacy
Download
See Alike in...
Alike App
Browser
647d
How do you process having Huntingtons disease?
0
1
Share
Huntington's Disease (HD)
advertisement
540d
The only thing I can say is you have to take it one day at a time or 1 hour at a time. I was diagnosed in 2016 and mine is starting to progress a little more each day.. You need a support system I don't have one and my doctors are trying to find me one I just got more diagnosis yesterday that it was progressing at the point that I am having severe problems walking.. the mental part of it is probably one of the worst things I thought until the fact that it hit my legs now.. My brother passed away almost 2 years ago with HD and he was my rock he was so brave dealing with it then was so much easier because we laughed about it how many times we fell a day.. We made jokes about it just to get through each day . Now my brother's gone I have no one either.. I would say the best thing is to get a support system. Communities like this which I've never been in and this is my first day however if you need to talk I would be happy to be there for you.. when I first joined the Huntington's disease foundation they called HD the devil's disease.. I kind of see why now it makes you feel like the devil at least it does me I'm mean and grouchy and a real witch to be around some days. I don't know how this community works because new today but I am here if you want to chat or talk.. I'm sorry if I was ranting here not sure what the rules are how much you're supposed to post.💕💕🤗💕
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions