Kiiroitori

351d

Do any of you have Periventricular brain lesions? My neurologist decided to go with a fibromyalgia dx instead of MS despite my raynaud's, tingling hands, and lesions. Is fibro associated with brain lesions too?

Chronic Generalized pain

Migraine

Fibromyalgia (FM)

View all
  • UnluckyUnicorn

    351d

    I would go see a new neurologist. Raynaud’s phenomenon, yes. Brain lesions, no. I would go advocate for yourself somewhere new, to someone who knows what they are talking about. Brain lesions should be taken seriously. I’m upset with the doctor, not you. I hate when they are just like “hm you have x, don’t worry about y, see ya”

  • Kiiroitori

    351d

    💕 Thank you for the reply! I had been on the fence about seeing another neurologist; he made a really good first impression but as time went on it just got more and more strange. I remember calling and asking about my arm dropping suddenly and his only comment was " that's not a symptom of migraine " - like, no kidding doc. And now he's claiming he didn't recommend a yearly MRI even though my mom was with me in the room when he said it, so I know I'm not remembering wrong.

  • UnluckyUnicorn

    351d

    Yikes, that’s called medical gaslighting and that’s very dangerous. You are not crazy, you are not wrong. You have a right to another opinion. You have a right to advocate for yourself. I hope you are able to get to another neurologist soon. I’m proud of you for trusting yourself to say that something wasn’t right about that! You know your body and you have a right to good treatment. I hope you get it!

  • Kiiroitori

    351d

    You're so kind! It really helps hearing that my thoughts are valid ❤️

  • UnluckyUnicorn

    351d

    I totally understand! It can be hard going through this and easy to doubt ourselves. Especially if the medical professionals that are supposed to be there to help us are feeding into those doubts. It can be isolating. Making an already scary experience worse. But you are valid! Your experience is valid. Your thoughts are valid. Your feelings are valid. And your pain is valid. Take care of yourself! I’m rooting for you ❤️

  • Averyram

    351d

    Always always get a second opinion it never hurts! Remember they work for YOU!

  • chonkyfeline

    351d

    I have all those same symptoms but my MRIs showed no lesions on my brain. My mom has MS and we have similar symptoms. I would request an MRI

  • saltybutsweet_22

    334d

    I have brain lesions that my neurologist says are just from my chronic migraines....🤔

  • Kiiroitori

    334d

    Are the lesions anterior @saltybutsweet_22? Cleveland clinic says that lesions from migraines are located on the outer sides of the brain and that migraine induced lesions don't appear on the center of the brain

  • saltybutsweet_22

    333d

    @Kiiroitori my mri report says there bilateral supratentorial.

  • Sexylady

    323d

    I have Traumatic Brain Injuries.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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