Asking about EDS subtypes

hEDS. i had genetic testing done & it said “variant of unknown significance” for the ADAMTS2 gene that is associated with the dermatosparaxis type.

Classic like

hEDS for me, my rheumatologist said you can’t have multiple kinds, which I don’t believe. Though it’s difficult to know which doctor is right when every single one has different “facts” about it. I was told I couldn’t get diagnosed without seeing a geneticist to rule out other forms of EDS. All I know for certain is that I’m hypermobile.

Type 1 ❤️ with chiari and heart issues

Waiting on my testing to find out! I have hyper mobility and skin issues like thin and translucent skin with easy bruising. I wonder about Classical-like type

My doctors are mostly on the fence about whether I have hypermobile or vascular. My symptoms aren't clearly one or the other, and I had a brain aneurysm when I was 19. They pretty much just tell me to "not worry about which subtype it is because the treatment is the same." Which while I understand, it's still frustrating

I have confirmed cEDS (COL5A1) and my geneticist thinks I might have hEDS too. 🥲

Waiting on my genetics results, but almost certainly hypermobile type! Also with dysautonomia, though still working with a cardiologist to figure out a diagnosis.

I'm hypermobile type too! And I'm not sure if I have POTS bc I have not yet taken a tilt table test, but I'm on propranolol and it really helps haha

Severe hypermobile with POTS