i have a couple questions. I was diagnosed at 13 and havent had to many complications since. Well in the last year I've had increased shoulder pain, they did a X-ray and they didn't find anything wrong with my bones. I spoke to my neurologist and they said that none of my things are NF related but I'm concerned that I have a tumor on my nerve. I have a lot of pain, loss of mobility, and muscle weakness. Anyone have any advice or ideas?along with this ive had trouble with my chest (pain, palpation, and shortness of breath) I just feel it's a lot of. just wait and see it if it continues, getting tired of feeling like I'm crazy
Wow that’s so late to be diagnosed at did you not have any signs at birth.
I feel like I am going crazy too. I go into the doctor office complaining about a pain, and then they do an MRI and ultra sound and find nothing on that area where it hurts… But I still have pain. SMH
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