SageKay

23d

okay. I have POTS. It's so bad that I can't drive because I pass out at the wheel. My cardiologist said that there's no current treatment I can have for POTS. Does anyone know of anything that makes it slightly better?

Propranolol

Midodrine

Postural Orthostatic Tachycardia Syndrome (POTS)

Fludrocortisone

Cardiac Dysrhythmias

Syncope

Palpitations

View all
  • Loblolly

    23d

    Can I ask first how long you have had symptoms/been diagnosed?

    • SageKay

      23d

      I've had symptoms since before 2019 but I was just recently diagnosed 2 months ago.

  • LIVINGWITHLYSSA

    23d

    Salt tabs

    • SageKay

      23d

      thank you I will try it!

  • Loblolly

    23d

    Okay, I have a lot for you. I’ve had it for more than a decade diagnosed, and I have a family history of it dating pretty far back. This is an overall list dating from 1916-present of what helps. -Compression socks -Hydration -Cut out artificial food dyes (big one) —ESPECIALLY red and blue (major cause of hearth palpitations) -Salt salt salt and more salt -Elevated feet whenever possible -Ice packs/remain as cool as possible -Glass of water before bed and ASAP next morning (no idea the science but it helps) -A consistent routine of sleep and waking up is essential. The more routine and structure you have in your life the better off you’ll be. I have no idea what your region is but COLD helps, and obviously high altitudes (example Colorado) does us NO favors.

    • Loblolly

      23d

      Oh, and hydration for example Gatorade is great, but if you overdo it on the electrolytes it will make you feel worse instead of better.

    • Loblolly

      23d

      And avoid anything and everything that has MSG in it, aka be careful around Chinese food especially. MSG can and will cause severe heart palpitations and make you more likely to be dizzy/pass out.

      • SageKay

        23d

        thank you so much. Im going to try a lot of these!!

  • catholivia

    23d

    I drink at least TriOral packet (can get on Amazon) every morning and it’s been a game changer for me. also salt stick capsules or chewable tabs! conditioning yourself to slowly increase exercise can help a lot too. and if your blood pools in your legs definitely try compression socks

  • curtain

    23d

    There is medication that can help POTS. I take propranolol, which helps me so much. Hydrating is important. My cardiologist suggested Liquid IV in my water when I'm feeling particularly potsy. Also, being aware of heat sensitivity if you have it is helpful. Light, wicked clothing makes a difference!

    • SageKay

      23d

      thank you so much!!

  • Smash

    22d

    I get weekly iv hydration and it has helped a ton!

  • Belugabear

    21d

    I’ve tried a lot of the things people have said, but I also wanted to mention there definitely are medications that help, especially if your blood pressure is also low when lying down (mine is). I’ve tried midodrine and fludrocortisone! The fludrocortisone worked better but because it is a steroid it made my cortisol levels extremely low. But they might be worth asking your doctor about! They aren’t perfect and need to be used with the other techniques mentioned, but it helps!!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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