Messymexi

306d

Anyone here with Gastro comorbidities?
3 years ago I was diagnosed with gasteroparesis, had at least 3 gastric emptying tests and a smart pill, had a feeding tube in my stomach for a year.
My main symptoms are vomiting after every meal, no matter how small, cramping, bloating, gas, I even throw up water and stomach acid.
my doctors are now telling me I do NOT have gasteroparesis and are getting rid of me. anyone have these symptoms and what's your diagnosis you received? I feel very forgotten and abandoned

Nausea and Vomiting

Ehlers-Danlos Syndrome (EDS)

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  • lovefelix

    306d

    Weirdly enough, MCAS has strange bloating/gastro issues, look into it.

  • Messymexi

    306d

    @lovefelix I have been toying around with that idea. Difficult though because I'm in an area where Drs think MCAS isn't real 😥

  • BoomerangValentine

    306d

    I’m so sorry you’re going through this. It sounds incredibly frustrating and scary. I have gastroparesis, and my symptoms definitely overlap with yours. My only thought is maybe you could look into vascular compressions? My friend was diagnosed with gp years ago, but her most recent gastric emptying study was normal even though her symptoms were worse. She ended up getting diagnosed with MALS, had surgery, and got a bit of relief. Best of luck!! 💕

  • Messymexi

    306d

    I've had two MALS surgeries now 😥 but thank you!

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