Living with CRPS: A Painful Day with Added Dental Woes

Uugh, yea! The issue is that some people don't believe what they can't see. My hubs defends me well. If you were gushing blood, needed a dressing etc people would "get" it. I also find, I just need someone who has a lot of pain, just to commiserate together. I have a friend w/RA. She helps. I have found several people on Instagram who have the same conditions. 🤔

100%. The pin started when I️ was 6, and I️ was diagnosed when I️ was 7 and until I️ got 6 nerve blocks when I️ was 12, my mom didn’t believe me. I️ used to tell her “I️ wish that for ten minutes, you felt the pain I️ feel constantly.” I’m lucky enough to have a best friend that says things to me like “I️ just pulled a muscle in my thigh and can barely walk and I️ was just thinking, “damn… Maggie lives with worse pain than this 24/7.” I️ have no idea how you do it, but you’re amazing.” You may have to search a bit, but you’ll find your cheerleaders. People who believe you to the point that you wouldn’t WANT them to feel it, people that cheer you on just for showering and doing the dishes. People who understand that our lives are objectively harder.

Omg I say that all the time. Sometimes I say ppl need to walk in my shoes