Benlysta for Lupus: Anyone else?

I am. I take 500mg self-injection once a week

Actemra made you swell so you weren't passing urine and filled with fluid. Your kidneys weren't working and fluid remained in tissues. It's the new med....

Yes, I have benlysta infusions once a month. It’s been wonderful for me. Allowed me to get off steroids and ensures I have way more good days.

Yikes that was not good for me I was taking xeljanz but I stop because it might be lowering my kidney function I’ve been taking it for almost 2 years it’s either that or this new chemo infusion Actemra but I only had to sessions so doubtful it could be that but I swelled up so bad I ended up in the ER so I’m trying to play it safe right now until I know more I’ve been thru a list of infusions for my SLE it has been a nightmare but I try to stay hopeful 🙂

No.. immunosuppressants changed my immune system..allergic to everything .meds, soaps, etc. Be careful...