lupus_babe

186d

anyone deal with blood clots or swelling of the heart? really scared😨

Edema & Anasarca

Disease of pericardium

Arterial Embolism & Thrombosis

Systemic Lupus Erythematosus (SLE)

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  • A.l.e.c

    185d

    I deal with blood clots regularly in my feet. Its scary but there's blood thinners and medicine that help lots

    • lupus_babe

      184d

      they don't want to start blood thinners because I'm also anemic. We're trial and erroring atm

  • Jessica8877

    180d

    Hi there. No blood clots for me but I do have myocarditis and pericarditis. It is very scary. Especially because I'm being told the myocarditis is pretty rare. I see a cardiologist and have been on a TON of steroids. Which do you have?

  • lupus_babe

    180d

    I cold turkied all meds when I got pregnant. Now I'm sol having to wait a year to get into a new rheumatologist and a few months for the cardiologist

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