Getting a Full Medical Diagnosis After a Muscle Biopsy

I’m 21 years old and I still don’t have a diagnosis after biopsies and genetic testing. It’s so frustrating!

I don't have income and have to use my states Medicaid. I've been denied disability for 8 years

You might have to travel, I know it sucks but VCU in Richmond, Virginia is a great place for Muscular Dystrophy under Dr. Nick Johnson (my doctor) this is his speciality and has a full team of doctors who specialize in DM, so my cardiologist, pulmonologist, speech pathologist, etc. all know how to deal with my condition. I know Johns Hopkins In Maryland is also very good in terms of Muscular Dystrophy

It seems the only geneticists around here are for children

Genetic testing