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Queenbee1996

658d

I've never really done anything like this so bare with me... I'm struggling I haven't been walking correctly I have no feeling in my legs my doctor doesn't take me seriously. and I just wanna know does it get better

Top reply
    • Blue_Star

      650d

      @Queenbee1996 I understand how hard it can be going through this with not much support, and even those that are there for you can never truly understand. I’ve learned that speaking with others who have MS is really the best source of knowledge out there… and support. So reach out anytime, us warriors gotta stick together 🧡

    • Demolition

      649d

      My doctor always ignores me about getting worse. 😒 I need to get a second opinion

    • Queenbee1996

      654d

      Thank you all for the advice I'm definitely going to start looking for a new doctor cause I can't handle it much longer I get anxiety just going to the nurologist because he doesn't listen my only support is my boyfriend threw this and he doesn't understand what exactly I'm going threw so I really appreciate the advice

      • Blue_Star

        650d

        @Queenbee1996 I understand how hard it can be going through this with not much support, and even those that are there for you can never truly understand. I’ve learned that speaking with others who have MS is really the best source of knowledge out there… and support. So reach out anytime, us warriors gotta stick together 🧡

    • HoneyBunny7373

      656d

      Ello Govna! I know its hard and stressful to feel like your body is starting to work against you. My best advice is to find another doctor. I agree with Blue_Star about advocating for your self. You dont deserve to feel that way and do deserve the right to get real help for your very real condition. Unfortunately my hand and arm are more of the problem for me and cant hold onto anything longer than a couple seconds. Even though its a pain in the ass and in some places impossible Im trying to find the right doctor for me and wont stop til I do. I wish you the best of luck and hope you have support going through this difficult honestly a shit show of a time. - MLR

    • Queenbee1996

      657d

      thank you I appreciate it beyond belief this journey has been a massive struggle honestly and like I told maebee I'm looking for a specialist I'm thinking about getting a cain but right now my boyfriend has been helping me walk and I feel bad for him cause I don't want him to feel like he has to take care of me I'm also super shy so I hate being the first person to message someone

      • Beans617

        652d

        @Queenbee1996 I walk with a trekking pole or both of them, they are super helpful. But my boyfriend helps me walk as well. I feel bad for him too (his dad has MS also, I I feel like I'm bringing back hard memories sometimes) but he really wants to walk me sometimes and be helpful. Anyway my Dr didn't take me seriously until I walked in with a cane and I had seen her a month earlier for the same leg issues with no cane 🙃 I have a great neurologist now after months of not being taken seriously. I believe that you'll find a great dr and get answers soon! ❤️ I am also available for a chat if you want. I'm brand new to being diagnosed (like 3 weeks).

      • Blue_Star

        657d

        @Queenbee1996 I can understand that. Always feel free to reach to me! I’m always happy to help!

    • MaeBea

      657d

      Oop, it seems I may need to figure out how this reply thing works better 😵‍💫

    • MaeBea

      657d

      I'm glad it helped. 💕 💕 I'll admit the hardest part for me was learning to accept and manage many of the symptoms, but I've been lucky. I hope you can find something that helps you with your symptoms too! Maybe I've been reading too much into things, but when you compare the neurological studies and discoveries with those maybe ten years ago, I am quite excited for what the future might hold.

      • Blue_Star

        657d

        @MaeBea Thanks! And I think being as optimistic as you can is always a positive, so good for you!

    • Blue_Star

      657d

      Hi Queenbee1996! It seems like we have a lot in common from our profiles. I have issues with my legs and walking or standing too long as well. I’ve also had issues with incompetent doctors. It’s really unfortunate but my best advice is “Advocate For Yourself”! Don’t let any doctor make you feel like what you are going through isn’t real or valid or important. This illness is tricky, and a lot of them don’t really know what to do. But keep pushing! Stand up for yourself! And I agree with MaeBea! Get a cheap can for now, for your safety and ease, and you’ll find a doctor that takes you seriously. I’m always here to chat or feel free to DM me! This disease is hard but you are not alone!

    • MaeBea

      657d

      I would definitely recommend a cheap cane from Walmart to help until you find another doctor who listens! It seems to have helped me be taken more seriously too. (And honestly, it's kinda funny how people part out of the way at the grocery store like I'm royalty. No worries of bumping into them! ) Or maybe they offer some kind of brace that might be easier? Or a wheelchair. No harm there if it helps. The medical world is full of all sorts of neat things nowadays. Who knows, maybe in a few years they'll be a more exact way of diagnosing and treating things. I know it's exhausting with all the appointments and everything, but when you find that one doctor who understands and orders the right tests to rule out even slight possibilities, everything seems to click. It took me quite a while to find one like that at a small nearby hospital instead of another big city specialist, so you'll definitely find help eventually, even if you don't expect it. I grew used to my "new normal" for years until I'm finally getting rid of symptoms. Things WILL get better, just keep telling yourself to stick around until they do. You've got this.

      • Queenbee1996

        657d

        @MaeBea thank you I'm definitely looking for a specialist because when I talk to my doctor it goes in one ear and out Another I was still asking him questions and he walked out of the room and said I'll see you in a couple months never told me the medication he was putting me on or anything

      • Blue_Star

        657d

        @MaeBea Hi! I know this response was not for me, but reading it helped, so thank you! It’s been 4 years since my MS diagnosis and my symptoms are just slowly getting worse, I know we are all different but it’s nice to know you were able to get rid of some symptoms after so long. 💪🧡

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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