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I had to see a cardiologist (Not my usual one or one of his team) in December 2022 as an urgent appointment I had contracted a severe case of flu which had flared my POTs and pericarditis. At the time he prescribe a long course of steriods which helped greatly. He also said he would refer me to a specialist in POTs and pericarditis to help with my conditions as the current management plan isn't working. Today (04/02/23) I received a copy of the referral letter he sent to them. In it he acknowledges my pericarditis and POTs diagnosis he believes that its actually anxiety and depression that I am ill. I literally sobbed as I read the letter. He implied that it was health anxiety and depression that I am ill not the case of flu exacerbating my long term conditions. Has anyone else experienced this, where a consultant writes off/minimises your concerns as mental health issue and ignores the real physical illness?
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Anxiety (Including GAD)
Syncope
Chronic constrictive pericarditis
Postural Orthostatic Tachycardia Syndrome (POTS)
Tachycardia
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@Juno2191 Thankfully I was able to find a good care team who believed me. I now have a POTS specialist who said that most of his and his wife's (husband/wife joint practice) patients have stories like that, unfortunately.
I'm sorry you experienced this š„ you aren't alone in it. I have had this happen as well for my POTS, as well as for my other medical conditions. I have cPTSD from my medical experiences as a child, and the doctors would write off my symptoms as medically related anxiety when I physically couldn't get out of bed without passing out from the blood rush. Doctors fail to realize that any anxiety I have is BECAUSE of the symptoms and not the true cause
Iāve definitely had doctors write off and/or minimize my symptoms. When I was able to I switched doctors and found someone reasonable and willing to actually listen and work with me. Iām sorry youāve experienced this too and I hope youāre able to find better help soon
@beingnotseeming Thank you. It took 5 years to get the POTs diagnosis and he effectively dismissed all that in the letter. The thing is I have health anxiety because no one seems to want to help me manage/control the POTs. If they did help me manage this condition my mental health would no doubt improve.
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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