My Brain Tumor is Not Cancer, But It's Just as Bad

I am sorry that you have endured so much and have been told such horrible things that minimize your diagnosis and struggles. Maybe a response to "at least it's not cancer" could be "I wish it was, at least then I would have a chance to be cured". Maybe that would shock them enough to see how insensitive they were. One major brain surgery is a huge deal, let alone two!! I don't know first hand what you are going through. But, I do understand. My sister is a brain aneurysm survivor. 12 yrs ago she had brain surgery to save her life. The things she has dealt with as a result is tremendous. But, everyone has minimized what she went through and deals with on a daily basis. 5 years later, she applied for disability and was told her symptoms weren't bad enough to qualify. It took her another 5 yrs of jumping through their hoops and failing each one and adding more symptoms and diagnoses (as a result of her aneurysm and brain surgery) to finally get disability. It should not be that hard to get what you deserve. All because it wasn't cancer. The system is messed up!! Some peoples responses are totally out of line! Just because it wasn't cancer doesn't mean your journey is less serious or less painful. Hugs and prayers

I am sorry you have to go thru that. You are correct that it was just as bad as cancer if not worse. It sounds like you had a horrible experience and unfortunately I have heard many tales of doctors not paying attention unless you fight them. I have found that unless you fight them and sometimes cheat the system you get no help. I sometimes wish there was a program to help with the financial burdens that are put on those of us who were ignored for years. But I believe the only recourse is to sue for malpractice and then you will be lucky to win. I also hear you on struggling to work with multiple issues. Due to me being ignored about my feet and stomach for so long I have developed major issues to the point where I almost feel like I can't walk and sometimes I can't even get out of bed. So I am here for you if you ever need a listening ear.

Also, not too blunt or a bad person. Your road has been painful and terrifying. Advocate for yourself and don't let anyone minimize your trauma.

I had a benign bone marrow tumor. I will have pain and problems for the rest of my life but hey, "at least it wasn't cancer" - I don't take that sort of toxic positivity very well. I've started telling people off by describing everything wrong with their comment and if they haven't run away I'll start describing my physical pains and conditions I guess I've decided that I'm not going to ingest peoples crap any more and giving them a dressing down always seems to make me feel better.

I'm sorry you're going through all of this suffering.

I'm glad you are able to get that off your chest. Do you feel better now? 🤗 I hate how stupid people can be. You are at a good point to start looking into on the job training or a technical school. Your local unemployment office might have some resources to help with career training as well. I am glad that you have made it through & are doing better now. 👍

I understand exactly what your going through . The medical we have no one cares

It's frustrating how rude people can be. I get it. I want to be pregnant so bad. My system is being weird compared to the first time around. Could always do McDonald's. With a doctor's note, you might be able to at least run out orders and clean lobby like the kids mostly do.

Yeah, some people really need to learn some boundaries about what is and is t okay to comment on… If it helps, I get upset over way smaller comments, so you are completely validated ✅

I'm sorry people are ignorant to the fact that tumors are in fact, a serious threat. Just take it with a grain of salt and pay no mind to them.