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688d
Dystonia is draining one minute I have energy then I'm tired like the flip of a light bulb.
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Benzyl Benzoate
Dystonia
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658d
I'm on Ativan and cogentin and other things. Out of the gate I'm great, but not much for stamina (have tardive dyskinesia, 2 types of Dystonia and dysarthria) I don't know which is worse, the conditions or the meds, but I have to take a nap, every day!
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@old_trout Wow, I'm in here so seldom I didn't know I already responded to this. I might delete this group. Go back to tick tock and the others. Take care all
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676d
šā¤ļø
I have two types of Dystonia. The mandibular annoyance I get Botox for and the really fun kind, that made it so I can never get a license again, as I can't turn my head right. It's settled in on the nerves between my scapula and the muscles front and back, making it harder to breathe. I have to take benzos to keep the muscles loose so I don't have an episode and suffocate. I'm on so many things now I have to nap every day
@old_trout I have mandibular and cervical. Keeping on weight has been struggle. One storm before diagnosis my throat closure barely could drink water.
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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