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Crystallynn

688d

Dystonia is draining one minute I have energy then I'm tired like the flip of a light bulb.

Top reply
    • old_trout

      658d

      I'm on Ativan and cogentin and other things. Out of the gate I'm great, but not much for stamina (have tardive dyskinesia, 2 types of Dystonia and dysarthria) I don't know which is worse, the conditions or the meds, but I have to take a nap, every day!

    • old_trout

      658d

      I'm on Ativan and cogentin and other things. Out of the gate I'm great, but not much for stamina (have tardive dyskinesia, 2 types of Dystonia and dysarthria) I don't know which is worse, the conditions or the meds, but I have to take a nap, every day!

      • old_trout

        658d

        @old_trout Wow, I'm in here so seldom I didn't know I already responded to this. I might delete this group. Go back to tick tock and the others. Take care all

    • Crystallynn

      676d

      šŸ™ā¤ļø

    • old_trout

      688d

      I have two types of Dystonia. The mandibular annoyance I get Botox for and the really fun kind, that made it so I can never get a license again, as I can't turn my head right. It's settled in on the nerves between my scapula and the muscles front and back, making it harder to breathe. I have to take benzos to keep the muscles loose so I don't have an episode and suffocate. I'm on so many things now I have to nap every day

      • Sleak67

        688d

        @old_trout I have mandibular and cervical. Keeping on weight has been struggle. One storm before diagnosis my throat closure barely could drink water.

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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