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MandazInTC

719d

Has anyone found any triggers for their NES? Like I feel like mine are temperature changes, pain, sleep deprivation, physically tired, and maybe stress. This goes for my fainting episodes too.

Top reply
    • NixFyre

      645d

      Stress and anxiety for sure

    • NixFyre

      645d

      Stress and anxiety for sure

    • Roman00

      697d

      Stress and anxiety and some times my ptsd

    • PicklesTheCat

      697d

      Omg yes I have the same ones, especially heat and sleep deprivation

    • poodlelover28

      704d

      Mine are all the same minus the pain!

    • IntentionallyBlank

      710d

      I know for sure mine are triggered by migraines.

      • MandazInTC

        710d

        @IntentionallyBlank Do you have a specific kind of migraine?

        • IntentionallyBlank

          710d

          @MandazInTC I think they’re called tension or cluster migraines but I’m not really sure. I don’t even think they’re migraines but my neuro says they are

    • MaddieDanielsen

      715d

      I suffer from anxiety and found that my panic attacks turned into my seizures. I do find that other triggers are weirdly enough, lack of noise, being cold or temperature changes quickly, my heart rate being too fast( too much caffeine) and yes I have fainting spells as well

      • MandazInTC

        710d

        @MaddieDanielsen Did a psychiatrist and neurologist work together for this diagnosis?

    • wise

      718d

      I have a heart problem that causes NES and hemiplegic migraines also tend to trigger them for me

      • MandazInTC

        710d

        @wise How did your neurologist determine this?

        • wise

          709d

          @MandazInTC it actually wasn't a neurologist! I made that determination after coming to the conclusion that my symptoms were caused by Long QT Syndrome, which is known for causing "seizure-like movements" (now known to be pseudoseizures or non-epileptic seizures). I did research on my symptoms and essentially just presented my case to anyone who would listen. eventually I found a cardiologist who actually looked through my records and listened when I spoke, he wanted a 30 day monitor and genetic testing, which did confirm my diagnosis. I understand self-diagnosis is not the standard procedure but it's the only thing that's worked for me and I've never been wrong. If you're having NES and can't find a cause, see a cardiologist. it may be heart related

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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