I recently went to my NF doctor and told her a slew of problems I was having but apparently nothing was NF related. I have chronic pain in my shoulder and they never did an MRI. I have chest pain in my sternum area (which is likely pectus excavatum) which has been linked to NF. I honestly do know if going to different people would be best or not. I just feel scared.

Neurofibromatosis (NF)

Chronic Pain

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  • Bobear


    Have you tried getting a message it helped me tremendously and try a chiropractor too. I have pectus excavatum too. I hope you can get some relief. I found this brand of hemp products that has a cooling gel that really works when my neck is stiff. ( I had spinal surgery at the neck area)

    • DuskySquire


      I have a family doctor appointment tomorrow so I hope to get more answers. Just my job is on the line at this point. 😥

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