See Alike in...

Alike App

Browser

tattooedlizardlady

599d

Those with chronic invisible physical illness, how old were you when you were diagnosed? My mom was a single mom and we had 1 family practitioner near us. She was Mormon and let her beliefs dictate what she did and didn't do for her patients. (Not all Mormons are bad, but she sucked.) Had a lot of bad/dismissive doctors over the years. Finally got my hypermobility diagnosed in 2021. Now to find a neurologist who doesn't look at me (28f) and immediately dismiss me.

Top reply
    • SharkBlood23

      599d

      2008 (14) it was blamed that I had to many sports injuries. 2010 (16) misdiagnosed with fibromyalgia. 2018 (24) diagnosed with hypermobilty syndrome/ joint hypermobilty syndrome. 2020 (26) diagnosed with hypermobile ehlers danlos syndrome. It's basically the same thing. (28) I have been dismissed many times, been in many arguments with. I've been told I am to young for my diagnosis... "but here I am with it" seems to be my line. I walk around with my paperwork from many doctors. Then the doctors try to get me to do "party tricks" to prove it. It's very hard to find a great doctor. Trust me. Are you in nj by any chance? If so I do know some doctors you may like.

    • SharkBlood23

      599d

      I would find who you insurance covers and google them to find reviews. My first neuro was a bad experience. Search and good luck.

    • SharkBlood23

      599d

      2008 (14) it was blamed that I had to many sports injuries. 2010 (16) misdiagnosed with fibromyalgia. 2018 (24) diagnosed with hypermobilty syndrome/ joint hypermobilty syndrome. 2020 (26) diagnosed with hypermobile ehlers danlos syndrome. It's basically the same thing. (28) I have been dismissed many times, been in many arguments with. I've been told I am to young for my diagnosis... "but here I am with it" seems to be my line. I walk around with my paperwork from many doctors. Then the doctors try to get me to do "party tricks" to prove it. It's very hard to find a great doctor. Trust me. Are you in nj by any chance? If so I do know some doctors you may like.

      • tattooedlizardlady

        599d

        @SharkBlood23 I am in Maine! I found a PCP, OBGYN, and chiro that I like. Just have to find a neuro who won't dismiss the random episodes I've had as blood sugar issues (I have hypoglycemia) before my tests are even scheduled.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion