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Is anyone familiar with Low Dose Naltrexone (LDN)? I started it about a month ago to see if it would help my pains/recovery time. The Dr I got it from says his fibromyalgia patients do well on it. I have EDS and CFS but I don't think I have fibro. Maybe though. Doesn't seem like there is much online in the way of research but would be nice to hear of success stories. Plus side is that I don't have any side effects and I do think it's boosting my mood a little in that it's easier to maintain a positive attitude and not get so overwhelmed. I don't think that was the actual intention haha. also could be coincidental given that it's only been a month. I'm also concerned bc I'm going to get pregnant later this year (despite everything) and wonder about being on it during pregnancy. I did find a Dr overseas who uses it in his fertility clinic successfully but I'd still like to hear a first hand account if there are any here. Thanks I'm advance!
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Generalized pain
Diffuse connective tissue disease
Naltrexone
Fibromyalgia (FM)
Chronic Generalized pain
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771d
Very helpful comments! Thank you!š The only thing I've noticed so far is that my (self diagnosed) PTSD is gone. I noticed that when I had a flare up this past week, I didn't mentally spiral at any point. I am finding it easier to stay present and feel more in control of how I'm feeling emotionally at any point. Overall I feel less anxious. Seems like that is a good enough reason to stay on it for me!
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772d
Hi, I have EDS and am on LDN and love it. Thereās a doctor near me who gives it to most of the EDS patients and some do amazing and some it doesnāt help at all. I couldnāt tell if it was helping or not until the pharmacy had issues and I couldnāt take it for a week. Suddenly any time something or someone touched me, it hurt. Thatās when I realized it helped a lot with those symptoms. Keep in mind that it takes a long time to build up in your system so itās effect may not be obvious, especially the first few months.
I have some and donāt use it all the time anymore, just when I have a flare up but I love it.
https://youtu.be/z0p0ykSzy9o
I have been on LDN for like 2 years. I have fibromyalgia and Ehlers-Danlos Syndrome. It has helped me a lot. There is a YouTube video that shows exactly what it does and stuff, I will look it up for you
Iāve been using LDN for about 6 months now. Iāve had no side affects. I use it for inflammation/aches and pains caused by POTS and autoimmune issues. My doctor was able to send it to an online pharmacy based in Canada. I order online š
LDN is still being researched as far as I understand. Using it for fibro is an off label use of the drug. But it is very effective for many fibro patients myself included. It cut my pain from an 8/10 to a 4/10 on average and adding lyrica on top of the LDN most days im pain free and max pain of 2/10 unless I do something major to trigger a flare. Itās a low risk medication with very few side effects. I get every side effect there is and then some with most meds and I have no negative side effects from LDN. Not sure about taking it while pregnant though as I donāt yet have children and am not trying to at this time.
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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