I was in a wheelchair, I was diagnosed with functional neurological disorder in 2017 and lost the ability to control my arms and legs in a typical fashion. I was able to re-learn to walk after extensive PT, but it was very difficult to make the transition to being chair bound. I hope you are fairing better
I have the same condition. PT gave up on me. But Occupational Therapy has helped me a ton.
That is awesome that you improved! I am getting better at controlling my seizures so I am happy for that.
I am also on a regular appointment with a Counterstrain massage therapist. I can't reccomend this enough. In one of my earliest appointments, I was wheeled in (wheelchair) and I was able to push my wheelchair out. Amazing bridge between Western & Eastern medicine.
I did a variety of different PT and OT as well as doing double time with my psychiatrist. It took a long time and I was really lucky to have a good team of therapusts who helped me get back on my feet. But the thing about FND is the symptoms can come on at any time. I was able to get to a place where I can walk (and talk, I lost that ability as well, but had a great speech therapist) but some new symptoms could come on anytime. It's a daunting process knowing it could get better, or worse anytime. I struggle with the thought that I could just get a new symptom. I have my tremors under control, but they get worse with stress. Keep working, do your PT/OT and don't give up on yourself.
I live in a very rural community and unfortunately I don't have that sort of help. However, I have significantly improvement my cognitive function by using different apps, books etc. I loose my ability to read sometimes.
I do lose my ability to talk and I fight that often. But I go on "walks" by myself with my service dog all the time.
I'm always striving for improvement and I have quit caring about the stares because of my tremors and stuff. I definitely won't give up! I love your ideas though and I will discuss them with my hubby and see if there is something we can find.
Every day is a new day with different symptom. I just access what I can do in the morning and go on about my day. I do miss being able to work but I'll get there.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.
Share
Copy Link
Copied
Join the Alike community
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
Monica12
222d
Anyone else in a wheelchair? How long? 2020 for me.
0
5
Share
Disorders of The Nervous System
Tremor
Wheelchairs
FourKit
222d
1
Monica12
222d
1
FourKit
222d
1
Monica12
221d
1
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision