Summer1980

37d

My daughter is 19 and is having fainting spells and chest tightness. After many trips to the ER by ambulance and many test including the table tilt test She is now diagnosed with POTS . She's prescribed a salt pill and compression stockings. Can anyone relate to this ? Any advice at all? This has been very scary! thank you

Postural Orthostatic Tachycardia Syndrome (POTS)

Chest pain

Propranolol

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  • TunaGoon

    37d

    ✋yes. Just hydrate take the salt and don't overdo anything physically/ take lots of breaks. I take propranolol and it has helped a lot to keep my vitals stable if somewhat low. It took some time but I'm a lot more comfortable and managing things now. :)

    • Summer1980

      37d

      thank you. She's also seeing a cardiologist, they wanna put a heart monitor on her for 30 days just to confirm that nothing else is going on. How many passing out episodes do you experience now vs before ?

      • TunaGoon

        37d

        Now I pass out maybe a few times a year. They tend to happen in clusters, nothing for months and then a couple times in 1 or 2 days. I still have other symptoms crop up, like chest pain, a few times a week but it's bearable

  • heatherjp

    35d

    Yes! I went through the same exact thing! Also get a blood pressure cuff (I got a wrist one) if you haven't already. The socks really do help tremendously too. I wish her luck! 🤗

  • Summer1980

    34d

    I'm sorry I've been so busy and dealing with my own diagnosis too but I do appreciate all the feed back and I'll get back in touch with you guys later tomorrow. Thank u

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