Looking for advice on rare medical conditions

Dra

567d

Hey, not sure how this app works yet but basically near overcame the OCD, down to give advice. Recently diagnosed with a rare mild form of Cystic Fibrosis and Crohn’s Disease, curious to get some advice.

Crohn's Disease (IBD) Inflammatory Bowel Disease

Chronic Generalized pain

Urinary Urgency

Obsessive-Compulsive Disorder (OCD)

Vedolizumab

Cystic Fibrosis (CF)

Prednisone

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Tokyo

561d

Hey Dra, regarding crohn’s, what can you tell us about your disease? When were you diagnosed? What are your symptoms and treatment?

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- Dra
  
  559d
  
  @Tokyo Yo Tokyo, I was diagnosed at 22. Experienced some pain and urgency. Didn’t think it was series till I saw some blood. They reduced the pain with Prednisone (steroid) and tapered it off after Entyvio infusion therapy. The infusions react weird with my body felt awful for the first 2 weeks but I stopped needing the steroids. After 3 infusions it only took me 5 days to feel better. Hoping it decreases each time. Seems to be working. I’m new to it so that’s all I really know
  
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Looking for advice on rare medical conditions

Dra

Tokyo

Dra

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Dra

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