witchywoman93

167d

Hi everyone. I found this app from an add and I'm wondering if it can help me find people to tell me their first hand experience with living with the conditions I have. my biggest hurdle has been Idiopathic-hypersomnia (diagnosed in 2020).

I feel like IH eats my lunch every single day.. how do you all manage this? it effects every single area of my life and I've tried all the meds available. I haven't felt "awake" in years. I'm just struggling and would love advice or opinions!

Idiopathic Hypersomnia

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  • sleepyheadsiren

    154d

    I started taking xywav and it helps so much!

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