I miss exercise. I miss not having limited safe spine mobility. I miss doing musical theatre and all the active things I used to do. I miss having my heart rate high without feeling like I'm dying from lack of air. I can't move quickly/freely without injury/sharp pains in my joints. I get so restless and frustrated not having a physical outlet and having to be so aware and careful with my body. It's so restricting. I feel so boring with how I talk less, and am less expressive with my body. I know I can build strength and stability to an extent but I also wanna be realistic with my hopes/goals and I know EDS is progressive and my joints/symptoms/abilities are rapidly worsening. I'm generally very accepting of my chronic illnesses/life but it also sucks so fucking much

Ehlers-Danlos Syndrome (EDS)

Postural Orthostatic Tachycardia Syndrome (POTS)

Chronic Pain

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  • Jay.Wish


    I am going through the exact same thing at the moment as a former athlete who has had progressively worsening EDS. If you ever want to chat or vent, feel free to reach out ❤️

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