Looking for Others with Occipital Lobe Epilepsy

I have epilepsy, idk which of the lobes is having the problems but I'm happy to talk at all if you want to

I have temporal lobe epilepsy and it took 11 years, 2 brain surgeries, and trying almost every med in the book before my seizures were under control. It's a nightmare of a disease and you're always welcome to message me. I'm a pretty open book

Hi! I have TLE and experience some minor hallucinations from time to time as well. I was VERY recently diagnosed but I’ve had the majority of my symptoms as long as I can remember.

If you've had an EEG, sometimes the stickers are only placed on the top of the head and not the bottom. My first EEG was when I was 7 and they only placed them on the top, but that's not where my epilepsy is located, mine is on the very back on my head/brain. So, when they finally found it, I was 15 and had been told I was faking it since I was 2. Know your truth and push to make others see it too

I know exactly how you feel

The they’ve been EEG correlated so at the minor ones I need to start my safety plan.