Need advice for upcoming EDS specialist appointment

Tell him that u haven't gotten 2 it. Idk if it's a time or pain issue for u. I know pain is my issue w PT. I'm supposed 2b going myself but my primary has 2 approve as well so I'm waiting for apts. If it's pain or energy issues let him know u have not had sufficient pain management. They can help w pain and energy issues. Having a life and this disease is complicated 2 say the least. If it's time management u let him know ur doing ur freaking best w what u have. Patience is what they need and understanding. If they don't understand any of that find another Dr hunny.