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Ryleigh_tolson

706d

I’m really tired of people judging me because of being visually impaired . I just want someone to talk to that gets it . Someone who can talk about their daily weird struggles of being legally blind . Someone to connect with and not having to worry about being judged .

Top reply
    • Heidi_M

      582d

      @HarleyNJoker18 The first time I lost my vision I was 21 years old. I lost it from having a shunt malfunction. 22 years later, I had another showing tomorrow function and lost 15 more percent. I had to develop coping mechanisms like different assistive tools in the kitchen, making schedules for different things, and practicing self compassion and patience as I continue to adjust. The one thing we both have in common is that we have wonderful people in our lives who are willing to take the journey with us. I have a lot of gratitude and love for the people in my life, and I tell them every day! Learning over time to replace my anger and resentment for this Disability, with gratitude for the vision I have left, and the people who are willing to put up with me! L O L!

    • HarleyNJoker18

      606d

      I'm with you! I have been visually impaired I illegally blind my whole life however a month ago I had a surgery that left me with even less sight so I am struggling to deal with all the new challenges including even more light sensitivity to the point where going out during the day at this point is very difficult until I figure out how to handle it. Right now I'm using big hats and sunglasses but that doesn't always seem to be enough. Also, adjusting to trying to cook and things like that. I am blessed to have a husband who is very understanding and allows me to keep the lights off in our house at all times :-)

      • Heidi_M

        582d

        @HarleyNJoker18 The first time I lost my vision I was 21 years old. I lost it from having a shunt malfunction. 22 years later, I had another showing tomorrow function and lost 15 more percent. I had to develop coping mechanisms like different assistive tools in the kitchen, making schedules for different things, and practicing self compassion and patience as I continue to adjust. The one thing we both have in common is that we have wonderful people in our lives who are willing to take the journey with us. I have a lot of gratitude and love for the people in my life, and I tell them every day! Learning over time to replace my anger and resentment for this Disability, with gratitude for the vision I have left, and the people who are willing to put up with me! L O L!

    • Aspie_Raven

      666d

      Oh yes, I have trouble with depth perception and constantly running into things or tripping over things that seem obvious to others, I became qualified for a cane last year and now everybody just looks at me like you don't really need that, you can see me just fine. Sure I can with one eye telling me your right in front of me and the other which can actually see you telling me that your 5 ish feet away. The barriers get crossed listening to the wrong one most of the time. They haven't went to grab their shoestring and touched the floor instead, or bruised their noggin on the wall that has been in the same place for 11 years, so as far as I am concerned I think they can keep their mouth shut. But I also know it's hard not to care about what others think so?

      • Ryleigh_tolson

        665d

        @Aspie_Raven hey feel free to message me sometime I’d love to talk

    • Heidi_M

      689d

      My name is Heidi. I am 46 years old and I have lost my vision twice. I only have 15% of it left. I first started losing my vision when I was 21 years old from a VP shunt malfunction. 22 years later I had another showing malfunction, and lost another 15%. The world has a very visually impaired individual is both exhausting and frightening at times, but I have learned to develop a sense of humor about some of it. One morning I went to fix breakfast, I had the coffee pot in one hand and the cereal in the other, I put the cereal in the bowl, and then proceeded to pour the coffee on top of it! I poured the milk into the cup and put them both back where they belong. My boyfriend came downstairs and walked into the kitchen and said, “ it looks like we’re having hot cereal today”. All I could do was laugh! I told him I would give him five dollars if he ate it, and he did! I had to give him the five dollars. Life gets really messy sometimes. For those of us who have the vision to clean it up it’s a no-brainer. But when you can’t see, it can take the most menial tasks and make them maddening. When this happens, you can do one of two things: You can crawl into bed and cry or you can laugh at yourself and feed the shredded wheat to others. I don’t know if anybody will understand my struggles, but they will never take away my strengths.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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