Watercolor_Diva

269d

I was wondering, how many of you have done the genetic testing? I sent in my DNA sample about three weeks ago and I am awaiting results. I have been diagnosed with hEDS. I think my genetic counselor wants to make sure she isn’t missing anything.

Joint pain

Ehlers-Danlos Syndrome (EDS)

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  • Phoenixwingfeather

    269d

    I did but they didn’t find much, I test low on their testing scale of hEDS but I have it strong enough to be a major pain in my ass and all my joints 😁

  • Kat_A

    268d

    Me but the results weren't enough so I'm getting more... currently diagnosed with hEDS

  • Berta

    268d

    My kids did they did not have anything else just the heds

  • AraS

    268d

    I have - 3 times. Suuuuuper helpful.

  • AraS

    268d

    I hope your geneticist realizes that hEDS isn’t diagnosable via DNA testing…

  • Kat_A

    265d

    I'm diagnosed with heds, my geneticist is an expert, but he believes I may have more so testing is continuing to look for other types or crossover types

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