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768d
I was wondering, how many of you have done the genetic testing? I sent in my DNA sample about three weeks ago and I am awaiting results. I have been diagnosed with hEDS. I think my genetic counselor wants to make sure she isn’t missing anything.
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Joint pain
Ehlers-Danlos Syndrome (EDS)
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765d
I'm diagnosed with heds, my geneticist is an expert, but he believes I may have more so testing is continuing to look for other types or crossover types
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767d
I hope your geneticist realizes that hEDS isn’t diagnosable via DNA testing…
I have - 3 times. Suuuuuper helpful.
My kids did they did not have anything else just the heds
Me but the results weren't enough so I'm getting more... currently diagnosed with hEDS
I did but they didn’t find much, I test low on their testing scale of hEDS but I have it strong enough to be a major pain in my ass and all my joints 😁
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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