Coffeek

142d

Managing chronic illness that causes severe intestinal pain and constant nausea while also trying to stay on track with Ed treatment has been rough. I’ll work myself up mentally to eat, but I can barely manage it because of how bad my nausea and pain can get I’ll lose all appetite..which will then put me in a worse spot with my Ed. It’s been a horrible battle and I’ve never felt so alone with it all, whenever I try to explain what’s been going on I don’t feel understood or I’ll feel like I’m being overdramatic

Generalized pain

Prednisone

Chronic Abdominal Distention

Nausea and Vomiting

Chronic Nausea and Vomiting

Chronic Generalized pain

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  • darkstarrynight

    142d

    That sounds terrible

    • Coffeek

      142d

      it’s been exhausting that’s for sure :,)

      • darkstarrynight

        140d

        yea seems so

  • Creator

    142d

    Let me tell you, you are NOT being overdramatic. I have Crohn's Disease, which makes my intestines feel like their actively killing me when I have a flare up. It has caused nausea, loss of appetite, CONSTANT pain (sitting, standing, walking, laying down, it doesn't matter, I'm in constant pain). So I wanna let you know, you are not alone in this journey. I went through the same, i understand some of what youre going through. I hope you rest well and get better because this kind of pain sucks.

    • Coffeek

      142d

      I appreciate this so so much honestly, that sounds so painful but I truly admire your strength and it helps so much to know I’m not alone. Just hoping my medical team can give me more answers so I can get proper help and stability finally so I can then put my focus on getting the help I need mentally. But I absolutely wish you the best as well!

  • Triple_C

    141d

    I’ve had Lupus for 13 years now and it’s totally turned my life upside down. I’m 47 and am handicapped from all of the steroids (prednisone) I’ve had to take. Didn’t know that was a side effect 😔. It’s totally destroying my bones thus leaving me handicapped because my bones are so brittle that they can break at any time. But I have chronic pain too and it’s horrible!! You’re not alone!! I have stomach problems and have had them since I was a kid. It’s horrible!! 😩. I always feel like everyone thinks I’m being over dramatic but they don’t have to live in my sick body EVERY SINGLE DAY. I wake up every day in pain. My bowels got damaged in an accident where i broke my neck in an accident. I have to take pain meds to just get through the day. But that doesn’t help my bowels. I pray 🙏 that your Drs find the right treatment for u!! Hang in here !! What doesn’t kill us makes us stronger!!

    • Coffeek

      140d

      I am so so sorry you’ve had to suffer through so much, you are insanely strong for holding on regardless of everything it’s so admirable! Being in chronic pain and waking up every day with anxiety for the knowingness that a flare up is more likely than not to occur is so horrible and so draining. It deserves to be understood far more by those around us. But thank you so much, this was really comforting and I’m hoping for the best for you as well!💕

      • Triple_C

        37d

        ❤️Awee, thank you 😊!! Really needed to hear this one today!! So nice to chat with people who actually understand!! You’re so sweet!! Thank you, it means more than u know!!:)). U can find me on FB under Breann Van Fleet and feel free to message me anytime you feel u need some support or just someone to talk to!! Take care and God Bless you and your family!!:)) 🙏 ❤️ 🙏 ❤️ 🤗 💕 🙌

  • Sparkie

    141d

    You are not alone, I myself am someone who goes through this on a daily basis. I completely get it and understand what you are talking about. My doctors have yet to find the cause of why this happens to me too, but I experience intestinal pain and bloating to the point where I have nausea and will throw up. I no longer have an appetite for anything, and any time that I eat I know I should expect pain within the hour. You are strong and powerful and I'm sending you good thoughts to help you get through the discomfort 🤗 Some things that help me occasionally in those moments are Pepto, Zofran, and warm bean bags that you put in the microwave. Have you tried anything to help relieve the pain?

    • Coffeek

      140d

      that’s exactly what I experience as well!😭 I haven’t gotten to a point of vomiting, but the nausea is absolutely horrific and I fear one day it’s going to turn into not being able to even keep anything down anymore. I’ve felt like I’ve been in this miserable waiting game to find out what’s truly wrong, I just want a clear diagnosis from my doctors and to be able to move forward with my treatment but they’ve been a mess with the process. I so understand your struggle I really do. And I have tried all 3 of those which really helps, Zofran has been a great temporary reliever for nausea and heat pads work wonderfully for the intestinal pain as well! Just have to use each of them constantly throughout the day in order to function better which is tiring but you have to do what you have to doTT. But really, thank you for such kind words and encouragement, I’m so glad to know I’m not alone it really means so much🥹

      • Sparkie

        140d

        I hope that your doctors will find a clear diagnosis soon! I am also in that process. I'm glad to know I'm not the only one either :)

  • rj.crow

    140d

    Been in recovery for 2 years with IBS and maybe gastroperesis (or however you spell it). It’s hell on earth to try and make myself eat. As long as I’m not actively vomiting, I usually take zofran and I constantly have either a peppermint or ginger candy in my mouth, and I still feel nauseous. Luckily my therapist helps out a lot with my ED, and I’ve managed to mostly recover, but I still have bouts of it getting really bad. You’re not being overdramatic by any means at all, and you’re not alone 💕

    • Coffeek

      140d

      God that sounds so painful I’m so sorry, I was first diagnosed with Ibs but I strongly believe it’s gastroparesis as well and my labs have been indicating that. It is a HORRIBLE illness it really is, especially when you can’t really do much to help it when flare ups occur ;) But I’m so glad your therapist has been able to help a bit with your Ed at least, it’s so hard to manage both a mental illness that makes eating and caring for yourself difficult but to then also be so physically sick even when you WANT to you can barely eat. I completely relate, it’s hard to stay in a recovery process with so much that can hold you back not even intentionally. It sucks to know someone is going through this as well, but having someone who understands makes this feel so much less isolating💓

  • applejac

    140d

    it's almost impossible for me to not fall back into my eating disorder after everything thats being going on with my stomach

    • Coffeek

      140d

      I completely understand, it really adds so much extra stress and hardship to a already hard enough situation as is :,)

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