Finding Support for Classic Galactosemia

Hey! My journey has been a Rough one. I’ve had so many problems. It’s caused me learning problems, fertile problems, I’ve been told at a young age around 12 I can’t have kids. As a kid I had to get physical therapy for a long time because my motor skills were delayed significantly. They said I will most likely be in a wheelchair for the rest of my life. I’m prone to liver failure. My growth has been stunted really bad. I’m almost 25 years old and my bone age is 14, which means I have the bones of a 14 year old which is why I will most likely need a wheelchair later in life. I really shouldn’t even be here anymore, after dying twice.

Hi! It's actually common in my family, how has you're journey been so far?