Living with Acute Intermittent Porphyria and Chronic Pain

I have porphyria. Not sure the type yet. I’m just diagnosed but have lots of neurological & organ damage from being undiagnosed all these years. Since I was a kid I’ve had skin issues. The severe abdominal pain, back pains, burning pains in my upper limbs, and chest pain didn’t start until adulthood. I now sleep 20 hours a day everyday. I have narcolepsy too- so I think sometimes the shock from the pain forces me to knock out. I still feel every bit of the pain even when I’m dreaming. I have to used a wheelchair and rollator now to get around. Walked fine up until like age 26. I have a lot of other issues too. Not sure if they’re from porphyria. Do you know a lot about porphyria?