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459d
Stomach issues from EDS and/or POTS. I posted a while back about how I don’t eat or drink a lot bc of the bloating and fullness I get. This week I’ve started having pain, like a dull soreness (on my left side mostly) when I feel bloated/full. I’ve also been struggling with constipation and just overall feeling like I have no room in my stomach. Years ago I had pain and went to the ER who told me it was related to constipation. This feels a bit similar. But I’m curious if this is something others have had. I get nauseous but don’t throw up and I still make myself eat enough to be okay. It’s just uncomfortable I mostly snack a lot. Some suggested gastroparesis on my last post and it seems like I could check off a lot of those boxes. It seems to flare up like this but it’s not always this bad. Just looking to see if others experience this.
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Constipation
Abdominal Distention
Ehlers-Danlos Syndrome (EDS)
Gastroparesis
Postural Orthostatic Tachycardia Syndrome (POTS)
Cromoglicic Acid
Chronic Abdominal Distention
Lethargy
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457d
I have gastroparesis and intestinal dismotility. Which causes a lot of issues like that.
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454d
@Teal100 thanks! I’ll look into it
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458d
I would definitely check out the Gastroparesis diagnostic criteria and pursue it. Sounds like you!
@kateafranklin thank you, I will!
I get this too. Could be GP, intestinal dysmotility, or could be other things like endometriosis, MCAS like some mentioned, or even vascular compressions
I get like this every once in a while as well. I was in a pain rehab clinic at mayo where they told us that smaller meals and snacking throughout the day can help. This might help if you are feeling full all the time
I’ve actually experienced the same things. It’s on my left side too. I’ve seen a gastrointestinal specialist, had 2 procedures done to figure out causation w/ no resolve. Wishing you the best & that they figure something out for you. If they do, pls share!
@Trulyloved thank you! I will be mentioning it to my doctor at my next appointment. I’ll let you know if I figure anything out.
This is almost identical to what I’ve struggled with. Could be gastroparesis, but also could be MCAS. Have you been diagnosed with mast cell?
@ZebracornV thanks for your response. I have not been diagnosed with MCAS. Neither Mcas or gastroparesis have been mentioned at my dr appointments either. I’m still new to all this and figuring it out. I honestly don’t know much about mcas aside from it being common with pots and eds. I’ll look into it. Thanks.
@Wanderinglumos also, smaller meals / snacking is super helpful for a lot of us with POTS anyway, bc less blood rushes to the abdomen for digestion which can cause extreme fatigue and drop in bp. (At least that’s how I understood it when it was explained to me)
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@Wanderinglumos I asked about MCAS bc after trying different things I have recently started oral cromolyn sodium. Not only has it helped the MCAS symptoms that we were trying it for, but it also seemed to help A LOT with my gastrointestinal symptoms, in particular my bloating (which for me can cause me to change up to 2 clothing sizes when it’s at its worst!).
Hey I'm going through something similar. Sending hugs ❤️
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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