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Catslovesoup

909d

What specialist should I see if I’ve been diagnosed with EDS? I have a rheumatologist, cardiologist and neurologist already. I also have POTS.

Top reply
    • Quackers

      904d

      Geneticists are helpful discovering the type of EDS you have (as there’s 13 known forms) but with hypermobile eds there’s no known gene mutation so you may have to go to a rheumatologist or orthopedist to get a diagnosis. POTS is a comorbidity of EDS and can show up in any type.

    • Quackers

      904d

      Geneticists are helpful discovering the type of EDS you have (as there’s 13 known forms) but with hypermobile eds there’s no known gene mutation so you may have to go to a rheumatologist or orthopedist to get a diagnosis. POTS is a comorbidity of EDS and can show up in any type.

    • Rachie

      905d

      I also recommend getting orthopedics for the specific joints you have problems with

    • SickCrochetGirl

      908d

      You probably need PT to strengthen your muscles so your joints stay in place better

    • lovingluna

      908d

      I got my diagnosis from a rheumatologist

    • Tinie

      908d

      I'm in the process of going to the geneticist after my EDS diagnosis. There are different kinds and some can effect things like the heart and blood vessels. So I would definitely be asking to get a referral to one

    • Maeve

      909d

      A geneticist would be helpful and I would recommend finding an internist for your primary care provider

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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