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What specialist should I see if I’ve been diagnosed with EDS? I have a rheumatologist, cardiologist and neurologist already. I also have POTS.
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Ehlers-Danlos Syndrome (EDS)
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904d
Geneticists are helpful discovering the type of EDS you have (as there’s 13 known forms) but with hypermobile eds there’s no known gene mutation so you may have to go to a rheumatologist or orthopedist to get a diagnosis. POTS is a comorbidity of EDS and can show up in any type.
905d
I also recommend getting orthopedics for the specific joints you have problems with
908d
You probably need PT to strengthen your muscles so your joints stay in place better
I got my diagnosis from a rheumatologist
I'm in the process of going to the geneticist after my EDS diagnosis. There are different kinds and some can effect things like the heart and blood vessels. So I would definitely be asking to get a referral to one
A geneticist would be helpful and I would recommend finding an internist for your primary care provider
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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