Urfacehurtsmetoo

355d

I’m completely lost. I have Temoralmandibular Disorder. I’ve tried numerous anxiety, muscle relaxers, and antidepressants to see if it could help with my TMJ pain. They think it might be a problem with my muscles contracting. I tried Botox (which made it worse), meds, ouid🍃, pt, mouth guards/splints, etc. The feeling is an intense pressure that builds the more stressed I am. The pressure causes tensions headaches, dizziness, fatigue, and numerous other pains. Nothing has given me long term relief, and I’m only getting worse. I’ve tried head and neck doctors, 5 specialists (even the head of UofM), dentists, and a physicians assistant for meds. Anyone have a similar experience or tips? Anything will help. I need to get the pain down soon because I need my wisdom teeth removed, and am super behind in life due to the set back. Ty

Headache

Dizziness

Temporomandibular joint disorders

Generalized pain

View all
  • Dreamer22

    352d

    Hey I’m so sorry for what you’re going through. Unfortunately I can’t offer too much other than my endless support. Feel free to DM if you want. Please be strong

  • julia_loves_cats

    346d

    I have also gone to numerous m specialist with no results, and kind of gave up for a while. I have all your symptoms and more, and it's debilitating. I've been practicing being more mindful of my body, noting sensations and trying to isolate a muscle here and there. Through that I've discovered that yes, it is all about my muscles constantly contracting, holding so much tension. One time, after getting an intense Thai massage, I felt my shoulder, mouth and neck muscles relax, and holy crap my body has completely forgotten that sensation. It's hard to explain but my best hypothesis is that it has everything to do with muscle tension and the body forgetting how to relax. I'm still in so much pain but I feel more hopeful now. Physical therapy exercises like stretching and strengthening muscles truly do help. And as cliche as it sounds, body mindfulness is so important.

  • George37

    345d

    Cannabis aka weed has been the most effective treatment I ever used for my tmj. It relaxes me and my tension and if I feel it coming on use my firefly 2 vape it relaxes me and sometimes goes away within minutes, and sometimes goes away completely within 20-30

  • LilyTheKitty

    343d

    I was thrown between doctors and dentists for years and finally found a TMJ and sleep apnea doctor who made an appliance that is like a retainer but moves your jaw a little to realign it. Also some jaw strengthening exercises. Now I only wear it at night and it prevents grinding. The biggest thing for me was learning not to grind and notice when I do it.

  • Letsdothis

    312d

    I bought this book on Amazon to help me understand my TMJ and it is amazing: The TMJ Healing Plan: Ten Steps to Relieving Headaches, Neck Pain and Jaw Disorders (Positive Options for Health) https://www.amazon.com/dp/0897935241/ref=cm_sw_r_cp_api_i_PHACEF49XWDKPPAYQVHM

  • Letsdothis

    312d

    The first chapter is all about posture and how our posture affects our TMJ. That was so eye opening. I think it’s the idea that we have to get back to the basics, to retrain our bodies how to do things differently (like how to sit or stand or even what positions to sleep in) now that we have our TMJ diagnosis.

  • Letsdothis

    312d

    I have also learned that sleeping on our backs with head facing the ceiling is the best way to sleep bc it is the least amount of pressure/force on our jaws. Moist heat, physical therapy and myofacial massage, and yoga to help reduce tension as much as possible. We share the same symptoms, it’s debilitating, keep trying different things until you find something that works even if just a little 🙏🏼

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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