Dealing with Long Term Flare Ups of hEDS

So I’ve JUST started taking distilled aloe, I’ll update after a few months of taking it but I’ve heard it’s helped many. I take glucosamine Chondroitin and a 2,000mg of vitamin C daily to help with the joint paint. Gentle stretches and exercises are vital to helping reduce daily pain. You may also consider going to a massage therapist if your body can tolerate it. Chiropractic care has helped me immensely but everyone has a different experience with that depending on their body’s tolerance to manipulation and the chiropractor’s experience with EDS patients. Cold therapy has been incredibly helpful for me. We can carry a lot of inflammation in our joints, I try to do at least 20 minutes of ice per day on my most painful areas. I also do gentle neck stretches while I’m in the shower with warm water running down my neck and shoulders. One of the biggest things you can do for yourself is avoid activity that causes stress to your body. Try to become very attuned to your body’s needs and recognize when you’re pushing yourself too much. Sit or lay if you feel fatigued (even before you feel fatigued!) and avoid any type of activity or exercise that puts stress or pressure on your joints. It’s a lotttt to take in and learn, but you’ve got a whole community here to support you 🫶🏻🦓