Chronic Headaches for 3 Years: Seeking Advice

How many rounds of Botox did you go through? It took two to three before it helped me. Also, look up occipital neuralgia or trigeminal neuralgia. Nurtec and Fioricet combo helps me some.

My pain radiates down my arms, if that makes sense. I don’t have bone spurs or anything other and some arthritis and the bulging disc. I was told that everything going on in my spine is too mild for any surgical intervention. I am really hoping I am a candidate for TOS surgery if that’s what it is, because the alternative is years of PT and i’ve been doing that already and it’s only getting worse. 🤦‍♀️

I have a similar story! I have all of the same symptoms as you, just on my left side. I have a bulging disc at c5-c6 and arthritis in there as well. All of my other scans were normal. I haven’t been able to figure out what’s up and i’m pretty much on bed rest because the pain that was mostly in my head has migrated down my neck and into my shoulders and back. My doctors think I may have Thoracic outlet syndrome, which on the surface seems like it’s a problem only involving the collar bone area and arms, but after tons of research and reading, I found out that it can severely impact the neck, and even be a partial cause for bulging discs. The neck pain from that can cause some pretty gnarly headaches as well. I’m on the road to a diagnosis, hopefully. I would definitely look into it, because all of my symptoms began and were like yours, but slowly morphed into a much larger demon. I’m sorry you’re going through this, I understand how hard it can be not being able to get answers. I’ve always said that it’s like whatever the hell is wrong with me is “camera shy”. I hope you get it all figured out and I’m here if you need to talk! :)