Tnicolle

310d

Looking for any new treatments for RSDS/CRPS. I’ve had RSDS since I was 15. At 19 I had my first Medtronic pain pump implanted. I’m about to be 43 and have decided to have it removed. I know there could be treatments I haven’t tried. I’m open to ALL suggestions. Thank you

Chronic Pain

Generalized pain

Chronic Generalized pain

Reflex sympathetic dystrophy

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  • SmokeyWillow

    307d

    I am currently doing ketamine treatments. Insurance doesn't usually pay so you have to come out of pocket. But I find it really helpful.

  • Bewell

    307d

    I was first diagnosed with RSD in 2008! I was already in my 3rd stage by then so none of the nerve blocks would work so they put me on OxyContin which PLEASE EVERYONE DO NOT TAKE! It is poison! I got better after 2 years after being in chronic pain. It just went away. I was amazed. Well a few years ago it started to try to come back so I immediately got a nerve block and it stopped it from progressing. This has happened 3 times in the last 4 years. So I am good except for my other illnesses that cause pain. SmoketWillow. How do they do the Ketamine treatments? I know I was given it as a cream to put on my skin for what I didn’t know was Mast Cell Dysautonomia a form of POTS syndrome. If you have tried the nerve blocks and they don’t work as sometimes it takes a few of them to work I pray you find some other relief! 🙏🙏🙏. I am 51 now and I was diagnosed with it at 38 along with Epstein Barr Virus Chronic Fatigue Syndrome and a tumor in my Pituitary gland in my brain all within a months time. Back then they had nothing but two sites online about RSD! Now there is an Organization and all kinds of online help! And no doctors back then even knew about it! So I am at least glad your in a time where it’s out there more and there is an organization for it which I would look into! I did a few years ago. Also google Mayo Clinic bc they have all the latest research and info about illnesses that are true and accurate. My doctor suggested this! Good luck and lots of prayers to you and I pray you get better! Like me I went to being in the worst pain in my life to becoming much better in two years! You never know what God has in store for us in His timing. I know and we all need to remember that God still has a plan for all of us no matter what we are going through. He knows! You are not alone either!! 🙏🙏🙏❤️ to you!

  • JCC

    304d

    I take Ketamine Troches they dissolve in your mouth. I’m allowed 2-4 a day. And they help. Before the Troches I was on the nasal spray but that was burning my nose.

  • Trooper

    301d

    I was on opioids for 15 years (completely housebound for 3 years) and finally came off a year ago thanks to frequency specific microcurrent treatment. It’s the only treatment that worked for me, I had to start extremely gently but it really helps! At first I went to an acupuncturist who also did microcurrent treatment but eventually I was able to purchase my own device and can just use at home. I use it twice a week for 1 hour and no pain meds needed!! It was a long process coming off the meds, and you may experience opioid related withdrawal issues which can last a long time. But I also go to a spine clinic for physical therapy and do gentle exercise regularly. Microcurrent treatment gave me my life back.

  • ITOLISMAP

    292d

    Hello all! Have any of you had any success with external devices for pain relief?

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