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hiya! just got my diagnosis of psychogenic non epileptic attack disorder and FND, hoping to find some ideas on here on how to manage these conditions :)
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Psychogenic non epileptic seizure
Complex post traumatic stress disorder
Disorders of The Nervous System
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402d
For me, PTSD caused my FND and the thing that helps me most is EMDR. It was hard to find a practitioner that takes my insurance. I tell everyone in my life that it's been truly life-changing.
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Try to figure out any triggers that make your symptoms worse. For example flashing lights seem to trigger attacks for me. They may not be obvious and no one really warns you about them
Could I ask, where did you start for getting those diagnosis? I'm looking for help where to start to get my possible non epileptic seizures diagnosed and my probable fnd also diagnosed. I hope that makes sense ^^'
485d
Yes! Support is huge! Its so difficult to understand and cope when you dont have much support. ♡♡
biggest thing ive learnt is pacing yourself is key. as much as you want to continue life as normal,, take things slow and dont overdo things. find out what is manageable for you to do in a week,, and add in rest days. slowing myself down and reducing major stressors has massively helped my symptoms :)
@ohswear thank you for replying! i’ve just moved house to live closer to family so i can have more support and rest more, im hoping that will help me pace myself and alleviate my symptoms as much as i can! defo gonna take this advice on board, thank you!
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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