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My Journey with Myasthenia Gravis: A 20+ Year Diagnosis

Mgsnowflake

674d

I’ve had myasthenia Gravis from childhood and I was diagnosed after a 20+year journey to figure out what was causing my unexplainable muscle weakness and fatigue. how long did it took for your diagnosis?

1

10

10

Myasthenia Gravis (MG)

Lethargy

Acute lethargy

Pyridostigmine

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Top reply
    • cabbage

      658d

      I have done every test there is for a diagnosis of mg but the. Thing is I don't have antibodies for it ,so how are they supposed to treat me if I have. A reaction. To all the meds they have tried ,what's next

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    • cabbage

      658d

      I have done every test there is for a diagnosis of mg but the. Thing is I don't have antibodies for it ,so how are they supposed to treat me if I have. A reaction. To all the meds they have tried ,what's next

      0

      Reply
    • PushnThru

      669d

      The only reason it took 10 days because I already have Lupus and the specialist knew it was another disease

      0

      Reply
    • Jules14

      671d

      My symptoms started around age 12 and I was finally diagnosed with MG on my 27th birthday last week. I was started pyridostigmine and am on day 2 of taking it. What medication were you prescribed when diagnosed?

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      Reply
    • Bobby13

      674d

      Did you do any surgery?

      0

      Reply
      • Mgsnowflake

        674d

        @Bobby13 no I dint need any surgery I don’t have the thymoma I stared with my symptoms at like 7 years old. Weakness and fatigue can’t walk long distances

        1

        Reply
        • Bobby13

          674d

          @Mgsnowflake hope you are safe and healthy out there!

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          Reply
    • Bobby13

      674d

      45 years

      0

      Reply
      • Mgsnowflake

        674d

        @Bobby13 wow I can imagine how frustrating it was

        0

        Reply
        • Bobby13

          674d

          @Mgsnowflake I didn’t know about it or feel weak, I was advised to remove the Thymoma, did you do the surgery?

          0

          Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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