Mgsnowflake

166d

I’ve had myasthenia Gravis from childhood and I was diagnosed after a 20+year journey to figure out what was causing my unexplainable muscle weakness and fatigue.
how long did it took for your diagnosis?

Myasthenia Gravis (MG)

Lethargy

acute lethargy

Pyridostigmine

View all
  • Bobby13

    166d

    45 years

    • Mgsnowflake

      166d

      wow I can imagine how frustrating it was

      • Bobby13

        166d

        I didn’t know about it or feel weak, I was advised to remove the Thymoma, did you do the surgery?

  • Bobby13

    166d

    Did you do any surgery?

    • Mgsnowflake

      166d

      no I dint need any surgery I don’t have the thymoma I stared with my symptoms at like 7 years old. Weakness and fatigue can’t walk long distances

      • Bobby13

        166d

        hope you are safe and healthy out there!

  • Jules14

    163d

    My symptoms started around age 12 and I was finally diagnosed with MG on my 27th birthday last week. I was started pyridostigmine and am on day 2 of taking it. What medication were you prescribed when diagnosed?

  • PushnThru

    161d

    The only reason it took 10 days because I already have Lupus and the specialist knew it was another disease

  • cabbage

    150d

    I have done every test there is for a diagnosis of mg but the. Thing is I don't have antibodies for it ,so how are they supposed to treat me if I have. A reaction. To all the meds they have tried ,what's next

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