MoonWolf

270d

Has anyone experienced this before getting diagnosed with Fibromyalgia?

I had went to my doctor because I was experiencing a lot of pain with no unknown cause and I have family history of Fibromyalgia. They did some blood tests to see if they can see any markers for an autoimmune disorder. So one did come back positive for autoimmune but they needed more blood to test further on what is it. Half a week goes by and got the results that nothing came up positive so they just diagnosed me with Fibromyalgia.

I’m not saying I don’t have Fibromyalgia because I absolutely know that I do. But my problem I’m having is…do I have something else too?? Thoughts?

Fibromyalgia (FM)

Generalized pain

Diffuse connective tissue disease

Osteoarthritis (OA)

Joint pain

Ocular torticollis

Hypothyroidism

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  • Darling_Dutchess

    270d

    I know while the doctor was figuring out what they have still diagnosed fibromyalgia she believes that I have lupus but the actual marker for lupus was to low

  • Vanta

    270d

    I know when I got diagnosed with it, I basically had to fight to even get that diagnosis. I kept saying something was wrong, but they were like “nah, you’re young. Also you’re female and overweight, so that’s likely the entire problem.” 🙄. But I’m going through the same thing right now. I know something else is going on, even though the the tests aren’t showing it.

  • hhubbard

    270d

    YES. That’s been my experience for the last 5 years. I just recently found a rheumatologist and cardiologist who would listen and was diagnosed with dysautonomia. I feel like they diagnosed me with fibromyalgia at first in an attempt to just appease me. You know your body best, so don’t give up on getting answers!!

  • Doglover25006

    270d

    I have talked with a lot of people with fibromyalgia and not a single one had only fibromyalgia trust your instincts and keep digging

  • Nat_Nat

    270d

    I get a lot of negative tests or even tests that come back in the "maybe" range. Because this isn't a definitive "yes" it's been very hard to get doctors to give me a diagnosis. Sometimes they even think I'm lying

  • LillyDelvaux

    270d

    After many years of feeling like fibro wasn't the main thing wrong with me I found a list of common symptoms of MCAS. I had a big one that hadn't been explained/helped before, and researched it more. Started on H1 and H2 antihistamines per Dr Afrin's book. Felt better. Not fully, but it helps. Also found that because of having adhd (or other neurodivergent dx) I'm likely to have hypermobile joints which can cause muscle stiffness and pain around the joints. No doctors ever mentioned this. Most doctors don't know about MCAS. consider seeing allergist and neurologist.

  • tee39

    270d

    Same happen too me but I have alot of inflammation and that's cause from arthritis/ lupus but I dont have lupus my rheumatologist specialist says its seronegative rheumatoid arthritis..now I have little os arthritic in my hip and a tear lateral ..so it take time too find things out especially with our young age

  • mushroom_fairy

    269d

    i got diagnosed with hypothyroidism and months later my pain wasn’t resolving after being on meds for months. when i did research all my symptoms pointed to fibro, so my doctor ran tests for everything else it could’ve been and they all came back negative. fibro diagnosis is more so ruling everything else out because it can’t show up in a blood test, so it’s possible you could have something else too.

  • ClaireFraser

    269d

    It took me 11 years to get my fibromyalgia diagnosis and a gauntlet of tests. I’ve known I’ve had it for years. I would say that my GP wasn’t a good source for autoimmune. He just reads the results but doesn’t really refer me unless there are symptoms. Ask to see a rheumatologist and an endocrinologist. Some autoimmunes have similar symptoms so it’s best to go with the specialists. The only thing I obviously had was hashimotos.

  • Clementines

    268d

    When I got diagnosed with fibro my blood tests came back negative. My doctors said to keep getting blood tests periodically because other illnesses can pop up if you also have fibro

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