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418d
I just need somewhere to vent bc I have never had a flare this bad. I can barely keep my eyes open and am so exhausted. My neurologist recommended iv fluids at an urgent care and I finally went today and they don’t do iv fluids. I’ve had awful experiences getting them at my pcp but it may be my only option at this point. I’m in grad school and have 5 weeks left and I honestly don’t know how I’ll finish it when I’m feeling like this and can barely focus even though it’s online school. I have issues with my stomach which makes it hard to get all the fluids I need drinking which is why we were hoping iv fluids for the flare. I’m also just so exhausted with doctors and trying to fight to figure it out. I don’t even want to try and talk to them or schedule stuff anymore. I’m so burnt out with chronic illness and I don’t have anyone I want to bother with my venting. I appreciate you guys and I know you’ll understand. Sending spoons and love. Thank you for letting me vent.
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Dehydration
Malaise & Fatigue
Ehlers-Danlos Syndrome (EDS)
Postural Orthostatic Tachycardia Syndrome (POTS)
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413d
@Wanderinglumos that’s so frustrating. I also live in the middle of nowhere, so I get that
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415d
We recently got a place near me that does IV fluids. It’s like a spa place and all you have to do is book an appointment and go in and they give you your fluids. I’m in Alabama so that specific one probably isn’t near you, but my point is maybe search around and see if there is anything similar near you. I hope you get to feeling better.
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@NewYork thank you 🫶🏼 unfortunately I live in a really small town that doesn’t have any near it. So glad you have that resource!
@NewYork I think it’s called IV Therapy
Feeling your pain 😥 sending spoons 🥄
@chronically_may we’ve got this🫶🏼
Here for you sending spoons, better days will be ahead!
@Emmma thank you🫶🏼
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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It's completely understandable that you're feeling overwhelmed and exhausted dealing with chronic illness, especially during a flare. It can be frustrating when medical professionals don't provide the help you need. Remember that it's okay to vent and seek support from others who understand your situation. Keep pushing forward and take care of yourself as best as you can. Wishing you strength and sending spoons and love your way.
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